H · S · G Huntington · Study · Group
UNIFIED HUNTINGTON'S DISEASE RATING SCALE (UHDRS) and DATABASE
The UHDRS is a research tool which has been developed by the HSG to provide a uniform assessment of the clinical features and course of HD. The UHDRS has undergone extensive reliability and validity testing and has been used as a major outcome measure by the HSG in controlled clinical trials.
HOW TO ORDER A UHDRS TRAINING TAPE
Contact: SARAH SMITH, Communications/Membership Manager, Movement Disorders Society, by phone or email: 414-276-2145, ssmith@movementdisorders.org Request: Refer to Volume 11, Issues 1-3, The Unified Huntington’s Disease Rating Scale: Reliability and Consistency. Mov Disord 1996;11:136-142, Supplemental Tape Fee: $30 for MDS members, $100 for non-members, $5,000 for industry representatives Rating Scale: Refer to Huntington Study Group (Kieburtz K, primary author). The Unified Huntington’s Disease Rating Scale: Reliability and Consistency. Mov Dis 1996;11:136-142
UHDRS '99
UHDRS '99 represents an update and expansion of the UHDRS to enhance the utility and applicability of this research tool. The revised UHDRS '99 and accompanying manual are the copywritten intellectual property of the HSG.
UHDRS Natural History Database
The current UHDRS database numbers more than 4,000 individuals affected by or immediately at risk for HD. A cross-sectional and prospective analysis of the database of the UHDRS instrument was published in Movement Disorders (vol. 11:136-142,1996). In a large cohort using the UHDRS natural history database, the rate of functional decline was evaluated over a maximum of 4 years of observation. A full report was published in Neurology (54:452-458, 2000).
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