March 2010 News Updates
...March 9, 2010...
Registration is now open for the Parkinson Study Group 24th Annual Symposium on Etiology, Pathogenesis and Treatment of PD and Other Movement Disorders, taking place on Saturday, May 15, 2010.
...March 9, 2010...
NeuroSearch announces new findings supporting potential disease modifying properties of Huntexil®.read more...
February 2010 News Updates
...February 22, 2010...
HSG Press Release...HSG and EHDN Begin Joint Phase III Study in Huntington Disease (HD) (read more...)
...February 12, 2010...
Registration is now open for the Huntington's Disease Society of America 25th Annual Convention, taking place in Raleigh, North Carolina in June 2010.
...February 12, 2010...
PREQUEL is now enrolling. Please see PREQUEL page, or the PREQUEL Participating Site list for a site near you.
...February 10, 2010...
Click here to see the newly-posted ACR16 articles.
...February 9, 2010...
The HSG Publication list has been updated. Please see Publications and Abstracts.
January 2010 News Updates
...January 6, 2010...
The Third Annual Huntington Disease Clinical Research Symposium (HDCRS) took place on Saturday, November 21, 2009, at the Hyatt Regency in Baltimore, Maryland. Please see the Symposium Summary (by Marsha L. Miller, PhD) for more information.
December 2009 News Updates
...December 10, 2009...
HSG 2009 Summary Report - By Lavonne Veatch Goodman (December 9, 2009)
...December 4, 2009...
The Huntington Society of Canada (HSC), in partnership with the Huntington Study Group (HSG) is making available up to $150,000 Canadian each for meritorious research projects. Please see Request for Proposals for more information.
October 2009 News Updates
...October 20, 2009...
The HSG Clinical Studies information was recently updated.
September 2009 News Updates
...September 22, 2009...
CREST-E is now enrolling participants. Please see the CREST-E page, or the CREST-E participating site list for a site near you.
...September 1, 2009...
The 2CARE web page has been updated. Please see the 2CARE page (related documents section) for more information including some Q and A about the progress of the trial.
...September 1, 2009...
A new and exciting program has been developed for HD patients, families and caregivers titled "Help Us Find the Answers: A Clinical Research Workshop for the HD Community".
More information including registration details can be found on the Huntington Disease Clinial Research Symposium registration web site.
August 2009 News Updates
...August 18, 2009...
The HSG credentials new Research Sites regularly. The following locations are now official HSG members. Their contaction information will be added to the HSG Research Site List soon:
USA
Booth Gardner Parkinson's Care Center, Kirkland, Washington
Idaho Elks Rehabilitation Hospital, Boise, Idaho
University Hospitals Case Medical Center, Cleveland, Ohio
University of California Irvine, Orange, California
Struthers Parkinson's Center, Golden Valley, Minnesota
CANADA
Parkinson's and Neurodegenerative Disorders Clinic, Ottawa, Ontario
Winnipeg Clinic, Winnipeg, Manitoba
EUROPE
Istituto di Ricovero e Cura a Carattere Scientifico (IRCCS), Pozzillis, Italy
...August 12, 2009...
The Huntington Society of Canada/Huntington Study Group Request for Proposals Research Grants were awarded to Claudia Testa and Dylan Wint, (both of Emory University). Thank you to all who submitted propsals. Please see the Media Announcement for more details.
...August 12, 2009...
Thank you PHAROS study participants! (read more...)
July 2009 News Updates
...July 22, 2009...
Registration is now open for the 3rd Annual Huntington Disease Clinial Research Symposium.
...July 22, 2009...
HORIZON is now enrolling. Please see HORIZON for more information.
...July 2, 2009...
The Huntington Study Group participated as an exhibitor at the June 2009 HDSA Convention in Phoenix. The exhibit booth materials are now available.
...July 1, 2009...
Please see the HSG Study Flyer for a detailed chart view of currently enrolling studies and trials.
May 2009 News Updates
...May 27, 2009...
The 3rd Annual Huntington Disease Clinical Research Symposium (HDCRS) Keynote speakers are confirmed. Please see 2009 HDCRS for more information.
...May 27, 2009...
Meet the HSG Staff members.
...May 26, 2009...
The HORIZON trial will soon be enrolling participants. Please see HORIZON for more information.
...May 5, 2009...
The Call for Abstracts is now available for the 3rd Annual Huntington Disease Clinical Research Symposium which is taking place in Baltimore, Maryland, November 21, 2009.
...May 1, 2009...
Meet the HSG Executive Committee.
April 2009 News Updates
...April 23, 2009...
CREST-E expects to begin enrollment in late Summer. Please see CREST-E for more information.
...April 18, 2009...
The phase II clinical trial of minocycline in Huntington disease (HD) is complete. See DOMINO Results for more information.
...April 15, 2009...
The Huntington Society of Canada/Huntington Study Group Request for Proposals deadline was April 14, 2009. Thank you for all of your submissions. Please see Request for Proposals for more information.
...April 1, 2009...
The World Congress on Huntington's Disease, taking place in Vancouver in September 2009 is accepting abstracts. Registration is also open.
...April 1, 2009...
Registration is now open for the Huntington's Disease Society of America 24th Annual Convention, taking place in Phoenix in June 2009. Information about last year's Convention can be found on the HDAC web site.
March 2009 News Updates
...March 24, 2009...
Meet the newly-appointed HSG Executive Committee Members.
...March 18, 2009...
The 3rd Annual Huntington Disease Clinical Research Symposium location has been announced. It is taking place at the Hyatt Regency Baltimore. See the Events page for more information.
February 2009 News Updates
...February 27, 2009...
The HART (ACR-16) trial is looking to enroll participants. Please see the newly-posted ACR-16 article on the Huntington's Disease Drug Works web site.
...February 25, 2009...
The 2008 Huntington Society of Canada/Huntington Study Group Request for Proposal Awardee announcement is available. (read more...)
...February 17, 2009...
The HART trial continues to accept clinical trial participants. Please see Dr. Marsha Miller's news article on the HDSA web site.
...February 3, 2009...
RFP LETTER OF INTENT DEADLINE EXTENDED TO FEBRUARY 13, 2009 - - - The Huntington Society of Canada (HSC), in partnership with the Huntington Study Group (HSG) is making available up to $150,000 Canadian each for meritorious research projects. Please see Request for Proposals.
January 2009 News Updates
...January 27, 2009...
HSG Appoints new Executive Director (read more...)
...January 21, 2009...
The HSG Publication list has been updated. Please see Publications and Abstracts.
Previous News Updates...
The Huntington Society of Canada (HSC), in partnership with the Huntington Study Group (HSG) is making available up to $150,000 Canadian each for meritorious research projects. Please see Request for Proposals.
The 2008 Huntington Disease Clinical Research Program is now available. Please see 2008 HDCRS Program.
Two articles about the TREND-HD study were published on December 8, 2008 in Archives of Neurology. Please see TREND-HD for more information.
The HART study continues to enroll. The HART Press Release was posted today. Please see HART for more information.
The HSG Clinical Studies Chart was recently updated.
HSG 2008 Voting Results (December 2008)
The HSG Chair (Ira Shoulson) and Co-Chair (Steven Hersch) were running for re-election, unopposed. The HSG Executive Committee had one open Investigator position and one open Coordinator position. There were three nominees for the investigator position (Merit Cudkowicz, Blair Leavitt and Kathleen Shannon), and two nominees for the coordinator position (Christine O’Neill and Guerry Peavy).
We are pleased to announce the following election results:
Chair: Ira Shoulson (term - 2008-2014)
Co-Chair: Steve Hersch (term - 2008-2014)
Investigator: Blair Leavitt (term - 2008-2011)
Coordinator: Christine O’Neill (term - 2008-2010)
Thank you to all who participated! A special thank you and recognition goes to the HSG Nominating Committee: Rick Myers, Stewart Factor, Jody Goldstein, Mark Guttman, Linn Harrison and Lynn Raymond.
The HART trial is now enrolling. (read more...)
TETRA-HD - The U.S. Food and Drug Administration today (August 15, 2008) approved tetrabenazine, the first drug approved for use in the United States to treat Huntington’s disease, a fatal, inherited neurodegenerative disorder for which there is no cure. The action comes about eight months after an advisory panel unanimously voted to advise FDA to make the medication available to treat the disease (read more...). Prestwick, the TETRA-HD study sponsor, has posted information on their web site; HDSA has posted an article by Marsha Miller, PhD on their web site.
The 2CARE trial is now enrolling. (read more...)
COHORT has enrolled over 1,600 study participants to date. (read more...)
The DIMOND study sponsor, Medivation, made a public announcement about the top-line study results on July 7, 2008. Please see the Medivation Press Release, and also the Commentary by Marsha Miller for more information.
The Huntington Study Group participated as an exhibitor at the June 2008 HDSA Convention in Pittsburgh. The exhibit booth handouts are now available.