H · S · G Huntington · Study · Group
The health professionals who participate in the Huntington Study Group (HSG) each have a major commitment to CARE for people with HD and their families, and an equally compelling commitment to find better ways to treat symptoms while working toward finding a cure for HD. Each HSG clinical research site has a unique program designed to meet the needs of families in their community. Contact these sites to learn more.
Huntington Study Group Research Sites (Updated April 2008)  Location (State or Country, City)  Site Name  Contact Person  Phone Number AL, Birmingham University of Alabama at Birmingham Donna Pendley, LPN 205-996-7865  AZ, Scottsdale  Mayo Clinic Marie Malikowski, RN   480-301-8280 Australia - Kew St. George's Health Service Olga Yastrubetskaya, PhD 61-3-9816 0436 Australia - Mount Claremont Graylands, Selby-Lemnos & Special Care Health Service Carmela Connor, BP, MP, DP 61 8 9347 6464 Australia - Parkville Royal Melbourne Hospital Phyllis Chua, MD 61-3 95941479  Australia - Sydney  Westmead Hospital  Elizabeth McCusker, MD  61-2 98456793  CA, Los Angeles  UCLA School of Medicine  Sakena Patterson, BA  310-794-1225  CA, Sacramento  University of California Davis  Teresa Tempkin RNC, MSN, ANP 916-734-6278 CA, San Diego  Univeristy of California, San Diego  Jody Goldstein, BS  858-622-5854  CA, San Francisco University of California San Francisco  Andrea Zanko, MS or Mira Guzijan  415-476-9320 or 415-476-3788 Canada - Alberta, Calgary University of Calgary  Mary Lou Klimek  403-210-8548  Canada - Alberta, Edmonton  University of Alberta  Marguerite Wieler, MSc, PT  780-735-8809  Canada - British Columbia, Vancouver  University of British Columbia  Joji Decolongon, MSC  604-822-7928 Canada - Ontario, London London Health Sciences Center Mandar Jog, MD 519-663-3814  Canada - Ontario, Markham Centre for Movement Disorders Alanna Sheinberg, BA 905-472-7082, ext 230 Canada - Ontario, Ottawa Ottawa Hospital Civic Campus Tilak Mendis, MD 613-761-4583  Canada - Quebec, Montreal  Hotel-Dieu Hospital-CHUM  Hubert Poiffaut 514-890-8000 ext. 15585  CO, Englewood  Colorado Neurological Institute  Sherrie Montellano  303-762-6674  CT, Hartford  University of Connecticut Health Center  Mary Jane Fitzpatrick, APRN  860-679-4441  CT, New Haven  Institute for Neurodegenerative Disorders  Danna Jennings, MD or Tammie Kelsey, LPN, CCRC  203-401-4361 Europe - England, Cambridge Cambridge Centre for Brain Repair Roger Barker, BA, MBBS, MRCP, PhD 44-1223-331160 Europe - England, London National Hospital for Neurology and Neurosurgery Sarah J. Tabrizi, MD, PhD, BSC 44-207-837-3611 Europe - England, Manchester St. Mary's Hospital Julie Snowden, 44-161-276 6510 Europe - France, Créteil National reference center for Huntington's Disease Anne Catherine Bachoud-Lévi Md, PhD 33 149813793 Europe - Germany, Berlin Charite-Universitaetsmedizin Berlin Josef Priller, MD 49-30- 450 560560 Europe - Germany, Ulm Universitätsklinikum Ulm G. Bernhard Landwehrmeyer, MD or Anke Niess, RN or Christine Sorg, RN 49-731-500 50951 Europe - The Netherlands, Leiden LUMC Raymund Roos, MD, PhD 31 71 526 2197 Europe - Scotland, Aberdeen Clinical Genetics Centre, Argyll House Sheila Simpson, MBChB, BSc MD 44-1224-552120 Europe - Spain, Madrid Hospital Ramón y Cajal Justo García de Yébenes, MD or Guillermo García Rivas, MD or Monica Bascuñana 34-91-336-88-33 or 34-689-46-34-17 Europe - Wales, Cardiff Cardiff University, University Hospital of Wales Anne Rosser, BSc, PhD, MB BChir, MRCP 029-20-875188 FL, Gainsville McKnight Brain Institute, University of Florida Cami Swartz 352-273-5550  FL, Miami University of Miami School of Medicine  Monica Quesada  305-243-3647  FL, Tampa  University of South Florida  Marci McCall, MTS or Summer Carter Wolfrath, MSPH  813-974-6022 or 813-844-8511  GA, Atlanta  Emory University  Joan Harrison, RN  404-728-6364 GA, Augusta Medical College of Georgia John Morgan, MD, PhD or Buff Dill, BS ED 706-721-2798  IA, Iowa City  University of Iowa Stacie Vik or Anne Leserman 319-353-3716 or 319-353-4307  IL, Chicago Rush University Medical Center Jeana Jaglin, RN, CCRC 312-563-2900 IL, Chicago University of Chicago Katie Arrigo 773-834-1688  IN, Indianapolis  Indiana University School of Medicine  Kimberly Quaid, PhD  317-274-2390  KS, Kansas City  University of Kansas Medical Center  Carolyn Gray, RN  913-588-6983  KS, Wichita  Hereditary Neurological Disease Centre Gregory Suter, BA  888-232-4632  MA, Boston  Boston University School of Medicine  Melissa Diggin, GNP  617-638-7704  MA, Boston Massachusetts General Hospital Steven Hersch, MD, Phd or Louisa Mook, BA 617-724-2227  MI, Ann Arbor  University of Michigan  Kristine Wernette, RN, MS  734-936-5894  MD, Baltimore Johns Hopkins University  Abhijit Agarwal, MBBS, MPH or Debbie Pollard 410-955-1349 or 410-955-2398  MD, Baltimore University of Maryland School of Medicine  Kelly Dustin, RN or Karen Anderson, MD  410-328-7809  MN, Minneapolis  Hennepin County Medical Center  Dawn Radtke, RN  612-873-2943  MO, St. Louis Washington University Stacey Barton 314-362-3471  NC, Winston Salem  Wake Forest University School of Medicine  Vicki Hunt, RN or Christine O'Neill  336-716-8611 NJ, Edison New Jersey Neuroscience Institute Philip Hanna, MD 732-321-7950  NJ, Stratford  UMDNJ Huntington Disease Family Service Centers  Sandra Egan  732-235-4919 NY, Albany Albany Medical College Contance Nickerson, LPN or Donald Higgins, MD  518-262-6611 NY, Manhasset North Shore LIJ Health System, The Feinstein Institute Barbara Shannon, RN 516-562-2905  NY, New York City  Columbia University  Deborah Thorne, MSW  212-305-9172 NY, New York City  Terence Cardinal Cooke Health Care Center Ayana Duckett, BA or Anthony Lechich, MD 212-360-3978 or 212-360-3907   NY, Rochester University of Rochester  Charlyne Hickey, RN, MS or Carol Zimmerman, RN  585-341-7500 OH, Cincinnati University of Cincinnati Fredy J. Revilla, MD 513-558-3112  OH, Columbus  Ohio State University Sandra Kostyk, MD,PhD  614-688-8672  OR, Portland  Oregon Health & Science University  Pamela Andrews  503-494-0965 NJ, Marlton Drexel University College of Medicine, ( Hahnemann) Anna Alexander or Allen Rubin, MD 856-985-9851 PA, Philadelphia University of Pennsylvania Lisa Altin, BS  215-829-3582 PA, Pittsburgh University of Pittsburgh Nancy Lucarelli 412-692-4659  RI, Warwick  NeuroHealth Parkinson’s Disease and Movement Disorders Center Meg Lannon, RN, MS 401-921-4245 TN, Memphis University of Tennessee Health Science Center Cory Lohnes 901-448-3380 TX, Dallas University of Texas Southwestern Medical Center Ruth Dederich, RN 214-648-9574 TX, Galveston The University of Texas Medical Branch Penny Stanton, CCRP 409-747-2111  TX, Houston Baylor College of Medicine  Christine Hunter, RN, CCRC  713-798-3951  VA, Charlottesville  University of Virginia Health Sciences Center  Susan Dietrich  434-243-9129  WA, Seattle  University of Washington and VA Puget Sound  Hillary Lipe, ARNP  206-277-1825  WI, Milwaukee  Medical College of Wisconsin – Milwaukee  David Miller 414-805-5270      HSG Overview | Huntington's Disease Overview | What is a Clinical Trial? Clinical Trials in Progress | New Clinical Trial Initiatives Completed Clinical Trials HSG Working Groups | HSG / MDS Symposia Publications / Abstracts What's New? | UHDRS | Contributions| Other useful links | HSG Research Sites Top of Page