The health professionals who participate in the Huntington Study Group (HSG) each have a major commitment to care for people with HD and their families, and an equally compelling commitment to find better ways to treat symptoms while working toward finding a cure for HD.
Are you interested in becoming a HSG Research Site? New sites are being credentialed all the time. Please see Becoming an HSG Research Site for more information. A list of the newly-credentialed HSG Research Sites (as of August 2009) can be found on the News Page (at the August 18, 2009 entry).
Each HSG Research Site has a unique program designed to meet the needs of families in their community. Contact one of the sites on the list below to learn more.
HSG 2009
Baltimore, Maryland
UNITED STATES OF AMERICA
(By state: A, B, C, D, E, F, G, H, I, J, K, L, M, N, O, P, Q, R, S, T, U, V, W, X, Y, Z)
UNITED STATES OF AMERICA
(By state: A, B, C, D, E, F, G, H, I, J, K, L, M, N, O, P, Q, R, S, T, U, V, W, X, Y, Z)
ALABAMA
University of Alabama at Birmingham
CHB 314 1600 7th Avenue South
Birmingham, Alabama 35233
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, PHAROS
ARIZONA
Mayo Clinic
13400 E Shea Blvd
Scottsdale, Arizona 85259
HSG Investigator
John N. Caviness MD, phone: 480-301-8100
HSG Coordinators
Heather Stein BA CCRP, phone: 480-301-4750
Marie Malikowski RN, phone: 480-301-8280
Site is involved in the following HSG studies: 2CARE, COHORT, HORIZON, PHAROS
CALIFORNIA
UCLA Medical Center
Reed Neurological Research Center, 710 Westwood Plaza, Suite 1167
Los Angeles, California 90095
HSG Investigators
Susan Perlman, MD, phone: 310-794-1225,
Yvette Bordelon MD PhD, phone: 310-794-1225,
Nicholas Szumski MD,
HSG Coordinators
Angelina Gratiano,
Arik Johnson Psy D, phone: 310-206-8153,
Site is involved in the following HSG Studies: COHORT, PHAROS, PREDICT-HD
University of California Davis Medical Center Department of Neurology
4860 Y Street, Suite 3700
Sacramento, California 95817
HSG Investigators
Vicki L. Wheelock MD, phone: 916-734-6287,
HSG Coordinator
Terry Tempkin RNC MSN ANP, phone: 916-734-6278,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HORIZON, PHAROS, PREDICT-HD
University of California, San Diego
8950 Villa La Jolla Drive, C129
La Jolla, California 92037
HSG Investigator
Jody Corey-Bloom MD PhD, phone: 858-642-3470,
HSG Coordinator
Jody Goldstein BS, phone: 858-622-5854,
Site is involved in the following HSG Studies: COHORT, HART, HORIZON, PHAROS
University of California, Irvine
101 The City Drive South
Orange, California 92868
Site is involved in the following HSG Studies: 2CARE, CREST-E, HORIZON
University of California, San Francisco (UCSF)
350 Parnassus Avenue, Suite 905
San Francisco, California 94117
HSG Investigators
Michael D. Geschwind MD PhD, phone: 415-476-6880
Adam Boxer MD PhD, phone: 415-476-6880
Marc I. Diamond MD, phone: 415-514-4404
HSG Coordinator
Jonathan Gooblar, phone: 415-476-1686,
Other Site Contacts
Christina Wyss-Coray, Nurse, 415-476-6880
Joanne Robinson-Teran, Social Worker, phone: 415-476-6880
Andrea Zanko, Genetics Counselor, phone: 415-476-9320
Site is involved with the following HSG Studies: HORIZON, PREDICT-HD
COLORADO
Colorado Neurological Institute
701 East Hampden Avenue Suite 510
Englewood, Colorado 80113
HSG Investigators
Rajeev Kumar MD, phone: 303-357-5455
Vicki Segro MSN C-ANP, phone: 303-357-5455
HSG Coordinators
Diane Erickson RN BSN CCRC, phone: 303-762-6674,
Dawn Miracle MS, phone: 303-783-4974,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, PHAROS, PREDICT-HD
CONNECTICUT
Institute for Neurodegnerative Disorders
60 Temple Street, Suite 8b
New Haven, Connecticut 06510
HSG Investigators
Danna Jennings MD, phone: 203-401-4300,
Kenneth Marek MD, phone: 203-401-4300,
David Russell MD PhD, phone: 203-401-4346
HSG Coordinators
Wilma Uy MD, phone: 203-401-4339,
Karen Caplan MSW, phone: 203-401-4347,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, PHAROS
University of Connecticut Health Center
263 Farmington Ave
Farmington, Connecticut 06030
HSG Investigator
Kaloyan Tanev MD, phone: 860-679-4441,
HSG Coordinator
Mary Jane Fitzpatrick, APRN, phone: 860-679-4441,
Other Site Contacts
Bonnie Hennig LCSW, Cognitive Rater, phone: 860 679-4441,
Andrea Gainey, Cognitive Rater, phone: 860-679-4441,
Site is involved in the following HSG Studies: COHORT, CREST-E
FLORIDA
University of Florida Movement Disorders Center
100 S. Newell Drive, Rm. L3-100, PO Box 100236
Gainesville, Florida 32610
HSG Investigator
Hubert H. Fernandez MD, phone: 352-273-5550,
HSG Coordinators
Annie Smith-Bova, phone: 352-273-5611,
Other Site Contacts
Cami Swartz, Administrative Coordinator for Clinical Research, phone: 352-273-5612,
Site is involved in the following HSG Studies: 2CARE, HORIZON
University of Miami Miller School of Medicine
1501 NW 9th Avenue, 2nd Floor
Miami, Florida 33136
HSG Investigator
Carlos Singer MD, phone: 305-243-6732
HSG Coordinator
Monica Quesada, phone: 305-243-3647,
Anita Blenke PA-C MS, phone: 305-243-2235,
Other Site Contacts
Marian A. Perez, Regulatory Administrator, phone: 305-243-6200,
Site is involved in the following HSG Studies: 2CARE, COHORT, HORIZON, PHAROS
University of South Flordia - Movement Disorders Center
4 Columbia Drive Suite 410
Tampa, Florida 33606
HSG Investigator
Robert Hauser MD, phone: 813-844-4455,
HSG Coordinator
Holly Delgado RN, phone: 813-844-4453,
University of South Florida - HDSA Center of Excellence -Department of Neurology
12901 Bruce B. Downs Blvd., MDC-55
Tampa, Florida 33612
HSG Investigator
Juana Sanchez-Ramos PhD MD, phone: 813-974-6022,
HSG Coordinator
Marcia McCall MTS, phone: 813-974-6022,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, PHAROS
GEORGIA
Emory University
Wesley Woods Health Center, 1841 Clifton RD
Atlanta, Georgia 30329
HSG Investigators
Randi Jones PhD, phone: 404-728-6849,
Stewart Factor DO, phone: 404-728-4895,
Claudia Testa MD PhD, phone: 404-727-4174,
HSG Coordinators
Carol Ingram RN, phone: 404-728-6859,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HORIZON, PHAROS, PREDICT-HD
Medical College of Georgia
1429 Harper Street, HF1121
Augusta, Georgia 30912
HSG Investigator
John C. Morgan MD PhD, phone: 706-721-2798,
HSG Coordinator
Buff Allison Dill BSEd, phone: 706-721-0619,
Site is involved in the following HSG Studies: COHORT, CREST-E, HART
IDAHO
Movement Disorders Center
Idaho Elks Rehabilitaion Hospital
600 North Robbins Road
Boise, Idaho 83702
HSG Investigators
Lauren Seeberger MD, phone: 208-489-4599,
HSG Coordinators
Jane Harris RN MS, phone: 208-493-0324,
Peggy Vieira BS, phone: 208-493-0321,
Site is involved in the following HSG Studies: CREST-E,HORIZON
ILLINOIS
Rush University Medical Center
1725 W. Harrison Street; Suite 755
Chicago, Illinois 60612
HSG Investigator
Kathleen M. Shannon MD, phone: 312-563-2900,
HSG Coordinator
Jean A. Jaglin RN CCRC, phone: 312-563-2900,
Related Link: February 2009 Tetrabenazine Article
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, PHAROS
Universtiy of Chicago
5841 S. Maryland Avenue, MC2030
Chicago, Illinois 60637
HSG Investigator
Un Jung Kang MD, phone: 773-702-6389,
HSG Coordinator
Joan E. Young CCRC, phone: 773-834-1688,
Site is involved in the following HSG Studies: COHORT
INDIANA
Indiana University School of Medicine
975 W, Walnut
Indianapolis, Indiana 46202
HSG Investigator
Kimberly Quaid PhD, phone: 317-274-2390,
HSG Coordinator
Melissa Wesson MS, phone: 317-278-9545,
Other Site Contacts
Joanne Wojcieszek MD, Motor Rater, phone: 317-278-2340,
Site is involved in the following HSG Studies: 2CARE, COHORT, HART, HORIZON, PHAROS, PREDICT-HD
IOWA
University of Iowa
1-305 Medical Education Building
Iowa City, Iowa 52242
HSG Investigators
Jane Paulsen PhD, phone: 319-353-4551,
Kevin Duff PhD, phone: 319-335-6640,
Leigh Beglinger PhD, phone: 319-335-8765,
HSG Coordinator
Anne Leserman MSW LISW, phone: 319-353-4307,
Nancy Hale, BS,RN, phone: 319-353-4537,
Other Site Contacts
Christine Werling-Wikoske, Program Assistant, phone: 319-353-3007,
Ann Dudler, Project Assistant, phone: 319-353-4542,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, HORIZON, PHAROS, PREDICT-HD
KANSAS
Hereditary Neurological Disease Centre (HNDC)
654 North Woodchuck
Wichita, Kansas 67212
HSG Investigator
William M Mallonee MD, phone: 316-721-9250,
HSG Coordinator
Gregory Suter BA, phone: 316-721-9250 or toll free 888-232-4632,
Site is involved in the following HSG Studies: 2CARE, COHORT, HORIZON, PHAROS, PREDICT-HD
University of Kansas Medical Center
3599 Rainbow Boulevard
Kansas City, Kansas 66160
HSG Investigator
Richard Dubinsky MD, phone: 913-588-6970
HSG Coordinator
Carolyn Gray RN CCRC, phone: 913-588-6983,
Other Site Contacts
Janice Broyles RN, Clinical Research Nurse, phone: 913-588-0683,
Hilary Dubinsky, Research Assistant, phone: 913-945-5019,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HORIZON, PHAROS, PREDICT-HD
MARYLAND
Johns Hopkins University
600 N Wolfe St, Meyer Bldg., Ste. 2-181
Baltimore, Maryland 21287
HSG Investigators
Christopher Ross MD PhD, phone: 410-955-2398
Adam Rosenblatt MD, phone: 410-955-2398
Russell L. Margolis MD, phone: 410-955-2398
Jason Brandt PhD ABPP(CN), phone: 410-955-2619
HSG Coordinators
Claire Welsh, phone: 410-955-1349,
Nadine Yoritomo, phone: 410-614-9254,
Barnett Shpritz, phone: 410-955-2619,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, HORIZON, PHAROS, PREDICT-HD
University of Maryland Parkinson's Disease and Movement Disorders Center
22 South Greene Street
Baltimore, Maryland 21201
HSG Investigators
William Weiner MD, phone: 410-328-6483,
Karen Anderson MD, phone: 410-328-2212,
HSG Coordinators
Michelle Cines RN CCRC, phone: 410-328-7817,
Nancy Zappala RN CDE, phone: 410-328-7817,
Connie Nickerson LPN, phone: 410-328-0157,
Other Site Contacts
Ine Saka BS, IRB and Regulatory Document Submission, phone: 410-328-3333,
Kathleen Pear LGSW, Licensed Social Worker, phone: 410-328-2108,
Maura Deeley, Research Coordinator, phone: 410-328-7816,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, HORIZON, PHAROS
MASSACHUSETTS
Boston University
715 Albany Street, C329
Boston, Massachusetts 02118
HSG Investigators
Samuel Frank, MD, phone: 617-638-8647,
Marie Saint-Hilaire MD,
Anna Depold Hohler MD,
HSG Coordinator
Melissa Diggin NP, phone: 617-638-7704,
Site is involved in the following HSG Studies: 2CARE, COHORT, PHAROS
Massachusetts General Hospital
149 13th Street
Charlestown, Massachusetts 02129
HSG Investigators
H. Diana Rosas MD MS, phone: 617-726-9128
Steven M. Hersch MD PhD, phone: 617-726-9128
Anne B. Young MD, PhD
Jang-Ho J. Cha MD PhD
HSG Coordinators
Alex Bender BA, phone: 617-724-2227,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, HORIZON, PHAROS, PREDICT-HD
MICHIGAN
University of Michigan
1500 East Medical Center Dr., Taubman Ctr 1920
Ann Arbor, Michigan 48105-5316
HSG Investigators
Kelvin Chou MD, phone: 734-615-4772,
Roger Albin MD, phone: 734-764-1347,
HSG Coordinator
Kris Wernette RN, MS, phone: 734-936-5894,
Sitr is involved in the following HSG Studies: 2CARE, CREST-E, PHAROS
MINNESOTA
Hennepin County Medical Center
Neuro P-5; 701 Park Avenue
Minneapolis, Minnesota 55415
HSG Coordinator
Dawn Radtke RN
Site is involved in the following HSG Studies: COHORT, PHAROS
Struthers Parkinson's Center
6701 Country Club Drive
Golden Valley, Minnesota 55427
Site is involved in the following HSG Studies: 2CARE, CREST-E, HART, HORIZON
MISSOURI
Washington University School of Medicine
660 South Euclid Avenue, Campus Box 8111
St. Louis, Missouri 63021
HSG Investigator
Joel S. Perlmutter MD, phone: 314-362-6908
HSG Coordinator
Stacey K. Barton MSW LCSW, phone: 314-362-3471,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, HORIZON, PHAROS, PREDICT-HD
NEW JERSEY
New Jersey Neuroscience Institute
JFK Medical Center, 65 James Street
Edison, New Jersey 08818
HSG Investigator
Philip Hanna MD, phone: 732-321-7950,
HSG Coordinator
Charles Porbeni MD, phone: 732-321-7000,
Other Site Contacts
Arthur Walters MD, Sub-Investigator, phone: 732-321-7950,
Site is involved in the following HSG Studies: 2CARE, CREST-E
The Center for Neuropsychiatry
11009 Lincoln Drive West
Marlton, New Jersey 08053
HSG Investigators
Allen Rubin MD, phone: 856-985-9851
Anna Alexander, phone: 856-985-9851
NEW YORK
Albany Medical College
47 New Scotland Avenue
Albany, New York 12208
HSG Investigators
Eric S. Molho MD, phone: 518-262-6611,
Donald S. Higgins Jr MD, phone: 518-262-6611,
HSG Coordinators
Sharon Evans LPN, phone: 518-262-6611,
Katy Regan, phone: 518-262-6611,
Other Site Contacts
Heather Voorhees-Goosmann, Fiscal Coordinator, phone: 518-262-6611,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, PHAROS
Columbia University
630 West 168th Street P&S Box 16
New York, New York 10032
HSG Investigator
Karen Marder MD, phone: 212-305-9194,
HSG Coordinators
Carol Moskowitz MS RNC, phone: 212-305-5779,
Ronda Clouse RN, phone: 212-305-2387,
Paula Wasserman MA, phone: 212-305-4597,
Other Site Contacts
Pietro Mazzoni MD PhD, Investigator,
Elan Louis MD, Investigator,
Steven Frucht MD, Investigator,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HORIZON, PHAROS, PREDICT-HD
North Shore-LIJ Health System Feinstein Institute for Medical Research
350 Community Dr
Manhasset, New York 11030
HSG Investigators
Andrew Feigin MD, phone: 516-562-2905,
Michael Pourfar MD, phone: 516-562-2426,
HSG Coordinators
Barbara Shannon RN, phone: 516-562-2905,
Jean Ayan RN, phone: 516-562-2426,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, PHAROS
Terence Cardinal Health Care Center
1249 Fifth Avenue
New York, New York 10029
HSG Investigator
Anthony J. Lechich MD, phone: 212-360-3907,
HSG Coordinator
Ayana Duckett BA, phone: 212-360-3978,
Other Site Contacts
Joseph Klager MD, Primary Care Physician, phone: 212-360-3610/3613
University of Rochester Medical Center/Movement and Inherited Disorders Unit
919 Westfall Road, Bldg. C, Ste. 220
Rochester, New York 14618
HSG Investigators
Kevin Biglan MD, phone: 585-341-7500,
Ray Dorsey MD, phone: 585-341-7500,
Fred Marshall MD, phone: 585-341-7500,
Bernard Ravina MD, phone: 585-341-7500,
HSG Coordinators
Carol Zimmerman RN, phone: 585-341-7500,
Charlyne Hickey MS RNC, phone: 585-341-7519,
Amy Chesire LCSW-R MSG, phone: 585-341-7500,
Other Site Contacts
Mary Wodarski, cognitve rater, phone: 585-341-7500,
Sheelah Eason, Research Support, phone: 585-341-7500,
Lisa Deuel, Research Assistant, phone: 585-341-7500,
Site is involved in the folllowing HSG Studies: 2CARE, COHORT, CREST-E, HART, HORIZON, PHAROS, PREDICT-HD
NORTH CAROLINA
Duke University
932 Morreene Rd.
Durham, North Carolina 27705
HSG Investigators
Burton Scott MD PhD, phone: 919-668-2493,
Mark Stacy MD, phone: 919-668-3597,
HSG Coordinators
Sarah Wyne, MDIV, phone: 919-668-2837,
Lisa Gauger BA, phone: 919-668-1538,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HORIZON
Wake Forest University Health Sciences
Medical Center Blvd.
Winston-Salem, North Carolina 27157
HSG Investigator
Francis Walker MD, phone: 336-716-8611
HSG Coordinator
Christine O'Neill, phone: 336-716-8611,
Victoria Hunt RN, phone: 336-716-2131,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HORIZON, PHAROS
OHIO
The Ohio State University
371 McCampbell Hall, 1581 Dodd Dr
Columbus, Ohio 43210
HSG Investigators
Sandra Kostyk MD PhD, phone: 614-688-3675,
Karen Thomas DO, phone: 614-688-4048,
HSG Coordinator
Allison Seward MS, phone: 614-688-8672,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, HORIZON, PHAROS
University of Cincinnati/Cincinnati Children's Hospital
222 Piedmont Avenue, Suite 3200
Cincinnati, Ohio 45219
HSG Investigator
Fredy Revilla MD, phone: 513-558-0018,
HSG Coordinators
Mary Beth Bialick MSW, phone: 513-558-0018,
Maureen Gartner RN, phone: 513-558-0018,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART
University Hospitals Case Medical Center
11100 Euclid Avenue
Cleveland, Ohio 44106
OREGON
Oregon Health & Science University
3181 SW Sam Jackson Pk. Rd, OP-32
Portland, Oregan 97239
HSG Investigator
Penny Hogarth MD, phone: 503-494-7352,
HSG Coordinators
April Wilson, phone: 503-418-1769,
Site is involved in the following HSG Studies: HORIZON, PHAROS
PENNSYLVANIA
University of Pennsylvania
330 S. 9th Street
Philadelphia, Pennsylvania 19107
HSG Investigator
Amy Colcher MD, phone: 215-829-7915,
HSG Coordinator
Lisa Altin BS, phone: 215-829-3582,
Other Site Contacts
Barbara Pyne, Contracts, phone: 215-829-3709,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, HORIZON, PHAROS
University of Pittsburgh
3471 Fifth Avenue, Suite 811
Pittsburgh, Pennsylvania 15213
HSG Investigators
J. T. Greenamyre MD PhD, phone: 412-648-9793,
HSG Coordinators
Nancy Lucarelli MA, phone: 412-692-4659,
Larry Ivanco, phone: 412-692-2394,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HORIZON
RHODE ISLAND
NeuroHealth
227 Centerville Rd
Warwick, Rhode Island 02886
HSG Investigator
Joseph H. Friedman MD, phone: 401-732-3332,
HSG Coordinators
Margaret C. Lannon RN MS, phone: 401-921-4245,
Lisa Sardinha BS, phone: 401-921-4246,
Lisa Laferriere, phone: 401-921-4208,
Site is involved in the following HSG Studies: 2CARE, HORIZON, PHAROS
TENNESSEE
University of Tennessee Health Science Center
855 Monroe Ave., Suite 415
Memphis, Tennessee 38163
HSG Investigators
Mark LeDoux MD PhD,
HSG Coordinators
Nathan Jones, phone: 901-448-6180,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART
TEXAS
Baylor College of Medicine
6550 Fannin St. #1801
Houston, Texas 77030
HSG Investigators
Joseph Jankovic, phone: 713-798-7438
William Ondo MD, phone: 713-798-7438
HSG Coordinators
Christine Hunter RN, phone: 713-798-3951,
Alicia Palao, MA, phone, 713-798-3974,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, PHAROS, PREDICT-HD
University of Texas Medical Branch At Galveston
301 University of Boulevard
Galveston, Texas 77555-0539
HSG Investigator
George Jackson MD, PhD
HSG Coordinator
Jeanene Delarosa, phone, 409-772-8031,
Ruthie Kolb, phone, 409-772-8068,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E
UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd, H1.108
Dallas, Texas 75390
HSG Investigator
Padraig O'Suilleabhain MD, phone: 214-648-2943,
HSG Coordinator
Allison Johnson BS CCRC, phone: 214-648-3329,
Site is involved in the following HSG Studies: 2CARE, CREST-E, HART
VIRGINIA
University of Virginia Health Sciences Center
500 Ray C. Hunt Drive
Charlottesville, Virginia 22903
HSG Investigator
Madaline B. Harrison MD, phone: 434-924-5568,
HSG Coordinators
Robert B. Davis FNP, phone: 434-243-5611,
Susan Dietrich MD, phone: 434-243-5422,
Other Site Contacts
Emily Snelling, Data Entry, phone: 434-243-5422,
Site is involved in the following HSG Studies: COHORT, PHAROS
WASHINGTON
University of Washington
1959 N.E. Pacific
Seattle, Washington 98195
HSG Investigators
Elizabeth Aylward, phone: 206-221-6610,
Ali Samii MD, phone: 206-764-2021,
Thomas Bird MD, phone: 206-764-2308,
Albert La Spada MD, phone: 206-598-2138,
HSG Coordinator
Hillary Lipe ARNP, phone: 206-277-1825,
Other Site Contacts
James Olson, Basic Sciences Researcher, phone: 206-667-7955,
Site is involved in the following HSG Studies: PHAROS
Booth Garden Parkinson's Care Center
12039 NE 128th Street, Third Floor
Kirkland, Washington 98034
Site is involved in the following HSG Studies: CREST-E, HART
WISCONSIN
Medical College of Wisconsin Department of Neurology
9200 W Wisconsin Ave
Milwaukee, Wisconsin 53226
HSG Investigators
Serena Hung MD, phone: 414-805-9719,
Karen Blindauer MD, phone: 414-805-5266
HSG Coordinator
Stephanie Rozman,phone: 414-805-9226,
Karen Abou-Samra, phone: 414-805-8359,
Clara Schindler, phone: 414-259-0469,
Site is involved in the following HSG Studies: HORIZON, PHAROS
UNITED KINGDOM AND EUROPE
ENGLAND
Cambridge Centre for Brain Repair
Forvie Site, Robinson Way
Cambridge, Cambridgeshire, England CB2 0PY
HSG Investigators
Roger Barker BA MBBS MRCP, phone: 01223 331160,
Ben Wright, phone: 01223 331160,
HSG Coordinator
Sarah Mason BSC, phone: 01223 331160,
Other Site Contacts
Kate Fisher, Administrator, phone: 01223-331160,
Site is involved in the following HSG Studies: CREST-E, HORIZON, PREDICT-HD
Dept of Clinical Neurosciences, Institute of Neurology
Rowland Hill Street
London, England NW3 2PF
HSG Investigator
Thomas Warner, phone: 44 207 8302951,
HSG Coordinator
Maggie Burrows RN BA, phone: 207- 794-0500 ext 36834,
Other Site Contacts
Thomasin Andrews MD BSC MRCP, Motor rater, ,
Elizabeth Rosser MBBS, Motor Rater,
Site is invovled in the following HSG Studies: PREDICT-HD
The National Hospital for Neurology and Neurosurgery/The Institue of Neurology, University College London
Box 104, Queen Square
London, England WC1N 3BG
HSG Investigators
Thomas Warner MD PhD, phone: 0207 837 0299,
Thomasin Andrews MD BSC MRCP, phone: 0207 837 0299,
Elizabeth Rosser MBBS, phone: 0207 837 0299,
HSG Coordinator
Sarah Tabrizi BSc PhD, phone: 0207 837 0299,
Site is involved in the following HSG Studies: HORIZON, PREDICT-HD
The University of Manchester
Medical Genetics Research Group and Regional Genetic Service St. Mary's Hospital
Hathersage Road
Manchester M13 0JH, United Kingdom
HSG Investigator
David Craufurd MBBS MSc FRCPsych, phone: 44-1612766510,
HSG Coordinator
Jenny Callaghan, phone: 44 1612765956,
Other Site Contacts
Elizabeth Howard BSc MBChB MRCGP, Motor Assessor, phone: 44 1612766510,
Site is involved in the following HSG Studies: CREST-E, PREDICT-HD
GERMANY
University of Ulm- Department of Neurology
Oberer Eselsberg 45/1
Ulm, Germany D-089081
HSG Investigator
Bernhard G Landwehrmeyer MD, phone: 49-731-500-63101,
HSG Coordinator
Katrin Barth, phone: 49-731-500-63108,
Sonja Trautmann, phone: 49-731-500-63081,
Site is involved in the following HSG Studies: HORIZON, PREDICT-HD
ITALY
Istituto di Ricovero e Cura a Carattere Scientifico (IRCCS)
IRCCS NEUROMED
Via Atinense 18
Pozzilli 86077
Site is involved in the following HSG Studies: HORIZON
SCOTLAND
North of Scotland Clinical Genetics Service
Clinical Genetics Centre, 1st Floor Argyll House, Cornhill Road
Aberdeen, Scotland AB25 2ZR
HSG Coordinators
Shelia Simpson MD, phone: 44 1224 552120,
Kirsty Matheson, phone: 44 1224 552120,
Site is involved in the following HSG Studies: PREDICT-HD
SPAIN
Hospital Ram'on y Cajal Sercicio De Neurologia
Planta-2 Centro
KM 9.100, Madrid , Spain 28034
HSG Investigator
Justo Garcia De Yebenes MD, phone: 31-91-336-8833,
Other Site Contacts
Maria Angeles Robles, phone: 31-91-336-8821,
Site is involved in the following HSG Studies:
WALES
Brain Repair Group, Cardiff University
Museum Avenue
Cardiff, Wales CF19 3US
HSG Investigator
Anne Rosser MD PhD MRCP, phone: 44 0 2920875188,
HSG Coordinator
Kathy Price RN, phone: 44(0)2920743454,
Other Site Contacts
Jenny Naji PhD BSC, Psychologist, phone: 44-0-2920875197,
Site is involved in the following HSG Studie: PREDICT-HD
CANADA
ALBERTA
University of Alberta Movement Disorders Program
10230 - 111 Avenue
Edmonton, Alberta T5G 0B7
HSG Investigators
Wayne Martin MD, phone: 780-735-8805,
Ted Roberts MD, phone: 780-735-8805,
HSG Coordinators
Pam King BScN RN, phone: 780-735-8805,
Marguerite Wieler MSc, phone: 780-735-8805,
Site is involved in the following HSG Studies: 2CARE, HART, PHAROS, PREDICT-HD
University of Calgary Movement Disorders Clinic Area 3
3350 Hospital Drive NW
Calgary, Alberta T2N4NI
HSG Investigators
Sarah Furtado MD PhD FRCPC, phone: 403-944-4364,
Oksana Suchowersky MD, phone: 403-944-4364,
HSG Coordinators
Mary Lou Klimek RN BN MA, phone: 403-210-8548,
Carol Pantella RN, phone: 403-220-2276,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, PHAROS, PREDICT-HD
BRITISH COLUMBIA
The University of British Columbia
Dept of Medical Genetics - UBC Hospital, 2211 Wesbrook Mall, Room S179
Vancouver, British Cloumbia V6T 2B5
HSG Investigators
Lynn A. Raymon MD PhD FRCP(C), phone: 604-822-7738
Blair R. Leavitt MDCM FRCP(C), phone: 604-822-7738
Michael R. Hayden MB ChB PhD FRCP(C) FRSC, phone: 604-822-7738,
HSG Coordinator
Joji Decolongon, MSc, CCRP, phone: 604-822-7928,
Other Site Contacts
Allison Coleman BSC, Research Coordinator, phone: 604-822-7739,
Rachelle Dar Santos, Research Assistant, phone: 604-822-7738,
Aaron Sturrock MB BS, Research Fellow, phone: 604-822-7738,
Susan Creighton, Genetic Counselor, phone: 604-822-7738
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, HORIZON, PHAROS, PREDICT-HD
MANITOBA
Movement Disorder Clinic, Deer Lodge Centre
200 Woodlawn Street
Winnipeg, Manitoba R3J 2H7
Phone: 204-940-8400
Site is involved in the following HSG Studies: COHORT, CREST-E
ONTARIO
London Health Science Centre
339 Windermere Road
London, Ontario N6A 5A5
HSG Investigator
Christopher Hyson MD, phone: 519-663-3404,
HSG Coordinator
Kori LaDonna BA, phone: 519-685-8500 EXT 34858,
Site is involved in the following HSG Studies: 2CARE, CREST-E, HART, HORIZON
Ottawa Hospital Civic Site
737 Parkdale Avenue
Ottawa, Ontario K1Y 1J8
HSG Investigator
Tilak Mendis MD, phone: 613-562-4253,
Site is involved in the following HSG Studies: CREST-E, HART
The Centre for Movement Disorders
2780 Bur Oak Avenue
Markham, Ontario L6B 1C9
HSG Investigators
Mark Guttman PhD, phone: 905-472-7082
John Adams PhD
HSG Coordinators
Adam Singer BA, phone: 905-472-7082 x229,
Jane Forsyth RN, phone: 905-472-7082 x 235,
Other Site Contacts
Alanna Sheinberg, Cognitive Rater, phone: 905-472-7082 x230,
Site is involved in the following HSG Studies: 2CARE, COHORT,HART, PHAROS, PREDICT-HD
Parkinson's and Neurodegenerative Disorders Clinic
1929 Russell Road
Ottawa, Ontario K1G 4G3
Phone: 613-737-4440
Site is involved in the following HSG Studies: HART
QUÉBEC
CHUM-Notre-Dame Hospital
1560 Sherbrooke east
Montréa, Québec H2L 4M1
HSG Investigators
Sylvain Chouinard PhD, phone: 514-890-8000 ext. 26470,
Michel Panisset MD, phone: 514-890-8000 ext. 26470,
HSG Coordinator
Hubert Poiffaut RN, phone: 514-890-8000 ext. 26470,
Daniel Lamourex PhD, phone: 514-412-8000 ext. 26394,
Other Site Contacts
Lyne Jean, Administrator, phone: 514-890-8000 ext. 26470,
Site is involved in the following HSG Studies: COHORT, CREST-E, HART, HORIZON, PHAROS
AUSTRALIA
NEW SOUTH WALES
Westmead Hospital, Department of Neurology Level 1A
Hawkesbury Road
Westmead, New South Wales 2145
HSG Investigator
Clement Loy MD,
Elizabeth McCusker MD, phone: 61-2-98456793,
HSG Coordinators
Shanthi Graham BS, phone: 61-2-98456793,
Jane Griffith RN, phone:61-2-98459139,
Bernadette Bibb PhD,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HORIZON, PREDICT-HD
VICTORIA
Academic Unit for Psychiatry of Old Age, Melbourne University
Normanby House, St George's Hospital, 283 Cotham Road
Kew, Melbourne, Victoria 03101
HSG Investigators
Edmond Chiu MD, phone: 613 9816 0508,
David Ames MD, phone: 613 9816 0485,
Andrew Churchyard MD, phone: 613 9500 9899,
Phyllis Chua MD, phone: 613 9594 1479,
Olga Yastrubetskaya PhD, phone: 613 9816 0436,
HSG Coordinators
Olga Yastrubetskaya PhD, phone: 613 9816 0436,
Bernadette Mannaa RN, phone: 613 9816 0444,
Anita Goh PhD, phone: 613 9816 0641,
Other Site Contacts
Joy Preston, Administrative Assistant, phone: 9816 0508,
Liz Ronsisvalle, Cognitive Assessor, phone: 9816 0482,
Phillip Dingjan BA, Cognitive Assessor, phone: 9816 0506,
Site is involved in the following HSG Studies: COHORT, CREST-E, HORIZON, PREDICT-HD
Royal Melbourne Hospital Melbourne Neuropsychiatry Centre
Depatment of Psychiatry 1 North, Main Block
Parkville, Victoria 3050
HSG Investigators
Phyllis Chua MD, phone: 61-3-9342-8750,
HSG Coordinator
Angela Komiti BBSc, M, phone: 61-3-9342-7705,
Site is involved in the following HSG Studie: PREDICT-HD
WESTERN AUSTRALIA
Neurosciences Unit, Perth Australia
Cnr Mooro Drive & John XXIII Avenue
Mount Claremont, Western Australia 6010
HSG Investigator
Peter Panegyres MB PhD, phone: 61-08-9347 6464,
HSG Coordinator
Mark Woodman B SC, phone: 61-08-9347 6464,
Other Site Contacts
Carmela Connor MP, Co-Investigator, phone: 61-08-9347 6464,
Site is involved in the following HSG Study: CREST-E, HORIZON
NEW ZEALAND
Auckland City Hospital
Private Bag 92024
Auckland, New Zealand
HSG Investigator
Richard Roxburgh MD, phone: 367-0000 EXT 35810
HSG Coordinator
Virginia Hogg, phone: 367-0000 EXT 35810
Site is invovled in the following HSG Studies: CREST-E
Last Updated: December 2009