The health professionals who participate in the Huntington Study Group (HSG) each have a major commitment to care for people with HD and their families, and an equally compelling commitment to find better ways to treat symptoms while working toward finding a cure for HD.
Each HSG Research Site has a unique program designed to meet the needs of families in their community. Contact one of the sites on the list below to learn more.
UNITED STATES OF AMERICA
(By state: A, B, C, D, E, F, G, H, I, J, K, L, M, N, O, P, Q, R, S, T, U, V, W, X, Y, Z)
UNITED STATES OF AMERICA
(By state: A, B, C, D, E, F, G, H, I, J, K, L, M, N, O, P, Q, R, S, T, U, V, W, X, Y, Z)
ALABAMA
University of Alabama at Birmingham
CHB 314 1600 7th Ave. So.
Birmingham, Alabama 35233
HSG Investigator
Leon S. Dure MD, phone: 205-996-7850, ldure@peds.uab.edu
HSG Coordinator
Donna Pendley LPN CCRC, phone: 205-996-7867, dpendley@peds.uab.edu
ARIZONA
Mayo Clinic
13400 E Shea Blvd
Scottsdale, Arizona 85259
HSG Investigator
John N. Caviness MD, phone: 480-301-8100
HSG Coordinators
Heather Stein BA CCRP, phone: 480-301-4750
Marie Malikowski RN, phone: 480-301-8280
CALIFORNIA
UCLA Medical Center
Reed Neurological Research Center, 710 Westwood Plaza, Suite 1167
Los Angeles, California 90095
HSG Investigators
Susan Perlman, M.D., phone: 310-794-1225, sperlman@mednet.ucla.edu
Yvette Bordelon MD PhD, phone: 310-794-1225, ybordelon@mednet.ucla.edu
Nicholas Szumski MD, , nszumski@mednet.ucla.edu
HSG Coordinators
Sakena Patterson BA, phone: 310-794-1225, sjpatterson@mednet.ucla.edu
Angelina Gratiano, , agratiano@mednet.ucla.edu
Angeline Lo BA, phone: 310-206-2669, angelinelo@ucla.edu
Arik Johnson Psy D, phone: 310-206-8153, acjohnson@mednet.ucla.edu
University of California Davis Medical Center Department of Neurology
4860 Y Street, Ste 3700
Sacramento, California 95817
HSG Investigators
Vicki L. Wheelock MD, phone: 916-734-6287, vicki.wheelock@ucdmc.ucdavis.edu
HSG Coordinator
Terry Tempkin RNC MSN ANP, phone: 916-734-6278, teresa.tempkin@ucdmc.ucdavis.edu
University of California, San Diego
8950 Villa La Jolla Drive, C129
La Jolla, California 92037
HSG Investigator
Jody Corey-Bloom MD PhD, phone: 858-642-3470, jcoreybl@vapop.ucsd.edu
HSG Coordinator
Jody Goldstein BS, phone: 858-622-5854, jlgoldstein@ucsd.edu
University of California, San Francisco (UCSF)
350 Parnassus Avenue, Suite 905
San Francisco, California 94117
HSG Investigators
Michael D. Geschwind MD PhD, phone: 415-476-6880
Adam Boxer MD PhD, phone: 415-476-6880
Marc I. Diamond MD, phone: 415-514-4404
HSG Coordinator
Mira Guzijan MA, phone: 415-476-3788, mguzijan@memory.ucsf.edu
Other Site Contacts
Christina Wyss-Coray, Nurse, 415-476-6880
Joanne Robinson-Teran, Social Worker, phone: 415-476-6880
Andrea Zanko, Genetics Counselor, phone: 415-476-9320
COLORADO
Colorado Neurological Institute
701 East Hampden Avenue Suite 510
Englewood, Colorado 80113
HSG Investigators
Rajeev Kumar MD, phone: 303-357-5455
Vicki Segro MSN C-ANP, phone: 303-357-5455
HSG Coordinators
Diane Erickson RN BSN CCRC, phone: 303-762-6674, derickson@thecni.org
Dawn Miracle MS, phone: 303-783-4974, dmiracle@thecni.org
CONNECTICUT
Institute for Neurodegnerative Disorders
60 Temple Street, Suite 8b
New Haven, Connecticut 06510
HSG Investigators
Danna Jennings MD, phone: 203-401-4300, djennings@indd.org
Kenneth Marek MD, phone: 203-401-4300, kmarek@indd.org
David Russell MD PhD, phone: 203-401-4346
HSG Coordinators
Wilma Uy MD, phone: 203-401-4339, wuy@indd.org
Karen Caplan MSW, phone: 203-401-4347, kcaplan@indd.org
University of Connecticut Health Center
263 Farmington Ave
Farmington, Connecticut 06030
HSG Investigator
Kaloyan Tanev MD, phone: 860-679-4441, katanev@uchdc.edu
HSG Coordinator
Mary Jane Fitzpatrick, APRN, phone: 860-679-4441, fitzpatrick@psychiatry.uchc.edu
Other Site Contacts
Bonnie Hennig LCSW, Cognitive Rater, phone: 860 679-4441, hennig@psychiatry.uchc.edu
Andrea Gainey, Cognitive Rater, phone: 860-679-4441, coopergainey@comcast.net
FLORIDA
University of Florida Movement Disorders Center
100 S. Newell Drive, Rm. L3-100, PO Box 100236
Gainesville, Florida 32610
HSG Investigator
Hubert H. Fernandez MD, phone: 352-273-5550, fernandez@neurology.ufl.edu
HSG Coordinators Annie Smith-Bova, phone: 352-273-5611, asmithbova@neurology.ufl.edu
Other Site Contacts
Cami Swartz, Administrative Coordinator for Clinical Research, phone: 352-273-5612, cami.swartz@neurology.ufl.edu
University of Miami Miller School of Medicine
1501 NW 9th Avenue, 2nd Floor
Miami, Florida 33136
HSG Investigator
Carlos Singer MD, phone: 305-243-6732
HSG Coordinator
Monica Quesada, phone: 305-243-3647, mquesada2@med.miami.edu
Anita Blenke PA-C MS, phone: 305-243-2235, ablenke@med.miami.edu
Other Site Contacts
Marian A. Perez, Regulatory Administrator, phone: 305-243-6200, mperez5@med.miami.edu
University of South Flordia - Movement Disorders Center
4 Columbia Drive Suite 410
Tampa, Florida 33606
HSG Investigator
Robert Hauser MD, phone: 813-844-4455, rhauser@health.usf.edu
HSG Coordinator
Holly Delgado RN, phone: 813-844-4453, hdelgado@hsc.usf.edu
University of South Florida - HDSA Center of Excellence -Department of Neurology
12901 Bruce B. Downs Blvd., MDC-55
Tampa, Florida 33612
HSG Investigator
Juana Sanchez-Ramos PhD MD, phone: 813-974-6022, jsramos@health.usf.edu
HSG Coordinator
Marcia McCall MTS, phone: 813-974-6022, mamccall@health.usf.edu
GEORGIA
Emory University
Wesley Woods Health Center, 1841 Clifton RD
Atlanta, Georgia 30329
HSG Investigators
Randi Jones PhD, phone: 404-728-6849, sjone03@emory.edu
Stewart Factor DO, phone: 404-728-4895, sfactor@emory.edu
Claudia Testa MD PhD, phone: 404-727-4174, ctesta@emory.edu
HSG Coordinators
Carol Ingram RN, phone: 404-728-6859, cdingra@emory.edu
Lisa Miyatake BS, phone: 404-728-6364, lmiyata@emory.edu
Medical College of Georgia
1429 Harper Street, HF1121
Augusta, Georgia 30912
HSG Investigator
John C. Morgan MD PhD, phone: 706-721-2798, jmorgan@mcg.edu
HSG Coordinator
Buff Allison Dill BSEd, phone: 706-721-0619, bdill@mcg.edu
Sherry Banks BS, phone: 706-721-2798, sbanks@mail.mcg.edu
ILLINOIS
Rush University Medical Center
1725 W. Harrison Street; Suite 755
Chicago, Illinois 60612
HSG Investigator
Kathleen M. Shannon MD, phone: 312-563-2900, kathleen_m_shannon@rush.edu
HSG Coordinator
Jean A. Jaglin RN CCRC, phone: 312-563-2900, jjaglin2@rush.edu
Universtiy of Chicago
5841 S. Maryland Avenue, MC2030
Chicago, Illinois 60637
HSG Investigator
Un Jung Kang MD, phone: 773-702-6389, unkang@uchicago.edu
HSG Coordinator
Joan E. Young CCRC, phone: 773-834-1688, jyoung@neurology.bsd.uchicago.edu
INDIANA
Indiana University School of Medicine
975 W, Walnut
Indianapolis, Indiana 46202
HSG Investigator
Kimberly Quaid PhD, phone: 317-274-2390, kquaid@iupui.edu
HSG Coordinator
Melissa Wesson MS, phone: 317-278-9545, mkwesson@iupui.edu
Other Site Contacts
Joanne Wojcieszek MD, Motor Rater, phone: 317-278-2340, jwojcies@iupui.edu
IOWA
University of Iowa
1-305 Medical Education Building
Iowa City, Iowa 52242
HSG Investigators
Jane Paulsen PhD, phone: 319-353-4551, jane-paulsen@uiowa.edu
Kevin Duff PhD, phone: 319-335-6640, kevin-duff@uiowa.edu
Leigh Beglinger PhD, phone: 319-335-8765, leigh-beglinger@uiowa.edu
HSG Coordinator
Anne Leserman MSW LISW, phone: 319-353-4307, anne-leserman@uiowa.edu
Other Site Contacts
Christine Werling-Wikoske, Program Assistant, phone: 319-353-3007, christine-werling@uiowa.edu
Ann Dudler, Project Assistant, phone: 319-353-4542, ann-dudler@uiowa.edu
KANSAS
Hereditary Neurological Disease Centre (HNDC)
654 North Woodchuck
Wichita, Kansas 67212
HSG Investigator
William M Mallonee MD, phone: 316-721-9250, hndcentre@aol.com
HSG Coordinator
Gregory Suter BA, phone: 316-721-9250 or toll free 888-232-4632, hndcentre@aol.com
University of Kansas Medical Center
3599 Rainbow
Kansas City, Kansas 66160
HSG Investigator
Richard Dubinsky MD, phone: 913-588-6970
HSG Coordinator
Carolyn Gray RN CCRC, phone: 913-588-6983, cgray1@kumc.edu
Other Site Contacts
Janice Broyles RN, Clinical Research Nurse, phone: 913-588-0683, jbroyles-gorman@kumc.edu
Hilary Dubinski, Research Assistant, phone: 913-588-6970, hdubinsky@kumc.edu
MARYLAND
Johns Hopkins University
600 N Wolfe St, Meyer Bldg., Ste. 2-181
Baltimore, Maryland 21287
HSG Investigators
Christopher Ross MD PhD, phone: 410-955-2398
Adam Rosenblatt MD, phone: 410-955-2398
Russell L. Margolis MD, phone: 410-955-2398
Jason Brandt PhD ABPP(CN), phone: 410-955-2619
HSG Coordinators
Claire Welsh, phone: 410-955-1349, cswelsh@jhmi.edu
Nadine Yoritomo, phone: 410-614-9254, nyorito1@jhmi.edu
Barnett Shpritz, phone: 410-955-2619, bshpritz@aol.com
University of Maryland Parkinson's Disease and Movement Disorders Center
22 South Greene Street
Baltimore, Maryland 21201
HSG Investigators
William Weiner MD, phone: 410-328-6483, wweiner@som.umaryland.edu
Karen Anderson MD, phone: 410-328-2212, kanderson@psych.umaryland.edu
HSG Coordinators
Michelle Cines RN CCRC, phone: 410-328-7817, mcines@som.umaryland.edu
Nancy Zappala RN CDE, phone: 410-328-7817, nzappala@som.umaryland.edu
Connie Nickerson LPN, phone: 410-328-0157, nickerc@peds.umaryland.edu
Other Site Contacts
Ine Saka BS, IRB and Regulatory Document Submission, phone: 410-328-3333, isaka@som.umaryland.edu
Kathleen Pear LGSW, Licensed Social Worker, phone: 410-328-2108, kpear@som.umaryland.edu
Maura Deeley, Research Coordinator, phone: 410-328-7816, mdeeley@som.umaryland.edu
MASSACHUSETTS
Boston University
715 Albany Street, C329
Boston, Massachusetts 02118
HSG Investigators
Samuel Frank, MD, phone: 617-638-8647, samfrank@bu.edu
Marie Saint-Hilaire MD, , neuromsh@bu.edu
Anna Depold Hohler MD, , anna.hohler@bmc.org
HSG Coordinator
Melissa Diggin NP, phone: 617-638-7704, melissa.diggin@bmc.org
Massachusetts General Hospital
149 13th Street
Charlestown, Massachusetts 02129
HSG Investigators
H. Diana Rosas, MD MS, phone: 617-726-9128
Steven M. Hersch MD PhD, phone: 617-726-9128
Anne B. Young, MD, PhD
Jang-Ho J. Cha MD PhD
HSG Coordinators
Alex Bender BA, phone: 617-724-2227, acbender@partners.org
MICHIGAN
University of Michigan
1500 East Medical Center Dr., Taubman Ctr 1920
Ann Arbor, Michigan 48105-5316
HSG Investigators
Kelvin Chou MD, phone: 734-615-4772, klchou@umich.edu
Roger Albin MD, phone: 734-764-1347, ralbin@umich.edu
HSG Coordinator
Kris Wernette RN, MS, phone: 734-936-5894, krsw@umich.edu
MINNESOTA
Hennepin County Medical Center
Neuro P-5; 701 Park Avenue
Minneapolis, Minnesota 55415
HSG Coordinator
Dawn Radtke RN
MISSOURI
Washington University School of Medicine
660 South Euclid Avenue, Campus Box 8111
St. Louis, Missouri 63021
HSG Investigator
Joel S. Perlmutter MD, phone: 314-362-6908
HSG Coordinator
Stacey K. Barton MSW LCSW, phone: 314-362-3471, bartons@neuro.wustl.edu
NEW JERSEY
New Jersey Neuroscience Institute
JFK Medical Center, 65 James Street
Edison, New Jersey 08818
HSG Investigator
Philip Hanna MD, phone: 732-321-7950, phanna@solarishs.org
HSG Coordinator
Albert Obiozo MD, phone: 732-321-7000 Ext. 68897, aobiozo@solarishs.org
Other Site Contacts
Arthur Walters MD, Sub-Investigator, phone: 732-321-7950, awalters@solarishs.org
The Center for Neuropsychiatry
11009 Lincoln Drive West
Marlton, New Jersey 08053
HSG Investigators
Allen Rubin MD, phone: 856-985-9851
Anna Alexander, phone: 856-985-9851
NEW YORK
Albany Medical College
47 New Scotland Avenue
Albany, New York 12208
HSG Investigators
Eric S. Molho,MD, phone: 518-262-6611, molhoe@mail.amc.edu
Donald S. Higgins Jr MD, phone: 518-262-6611, higgind@mail.amc.edu
HSG Coordinators
Sharon Evans LPN, phone: 518-262-6611, evanss@mail.amc.edu
Katy Regan, phone: 518-262-6611, regank@mail.amc.edu
Other Site Contacts
Heather Voorhees-Goosmann, Fiscal Coordinator, phone: 518-262-6611, voorheeh@mail.amc.edu
Columbia University
630 West 168th Street P&S Box 16
New York, New York 10032
HSG Investigator
Karen Marder MD, phone: 212-305-9194, ksm1@columbia.edu
HSG Coordinators
Carol Moskowitz MS RNC, phone: 212-305-5779, cbm4@columbia.edu
Ronda Clouse RN, phone: 212-305-2387, clouser@ghsc.cpmc.columbia.edu
Paula Wasserman MA, phone: 212-305-4597, pleber@ghsc.cpmc.columbia.edu
Other Site Contacts
Pietro Mazzoni MD PhD, Investigator, pm125@columbia.edu
Elan Louis MD, Investigator, edl2@columbia.edu
Steven Frucht MD, Investigator, sf216@columbia.edu
North Shore-LIJ Health System Feinstein Institute for Medical Research
350 Community Dr
Manhasset, New York 11030
HSG Investigators
Andrew Feigin MD, phone: 516-562-2905, afeigin@nshs.edu
Michael Pourfar MD, phone: 516-562-2426, mpourfar@nshs.edu
HSG Coordinators
Barbara Shannon RN, phone: 516-562-2905, Bshannon@nshs.edu
Jean Ayan RN, phone: 516-562-2426, jayan@nshs.edu
Terence Cardinal Health Care Center
1249 Fifth Avenue
New York, New York 10029
HSG Investigator
Anthony J. Lechich MD, phone: 212-360-3907, alechich@chcsnet.org
HSG Coordinator
Ayana Duckett BA, phone: 212-360-3978, aduckett@chcsnet.org
Other Site Contacts
Joseph Klager MD, Primary Care Physician, phone: 212-360-3610/3613
University of Rochester Medical Center/Movement and Inherited Disorders Unit
919 Westfall Road, Bldg. C, Ste. 220
Rochester, New York 14620
HSG Investigators
Peter Como PhD, phone: 585-341-7500, peter.como@ctcc.rochester.edu
Kevin Biglan MD, phone: 585-341-7500, kevin.biglan@ctcc.rochester.edu
Ray Dorsey MD, phone: 585-341-7500, ray.dorsey@ctcc.rochester.edu
Fred Marshall MD, phone: 585-341-7500, fred.marshall@ctcc.rochester.edu
Bernard Ravina MD, phone: 585-341-7500, bernard.ravina@ctcc.rochester.edu
HSG Coordinators
Carol Zimmerman RN, phone: 585-341-7500, carol.zimmerman@ctcc.rochester.edu
Charlyne Hickey MS RNC, phone: 585-341-7519, charlyne.hickey@ctcc.rochester.edu
Amy Chesire LCSW-R MSG, phone: 585-341-7500, amy.chesire@ctcc.rochester.edu
Other Site Contacts
Mary Wodarski, cognitve rater, phone: 585-341-7500, mary_wodarski@urmc.rochester.edu
Sheelah Eason, Research Support, phone: 585-341-7500, sheelah.eason@ctcc.rochester.edu
Lisa Deuel, Research Assistant, phone: 585-341-7500, lisa.deuel@ctcc.rochester.edu
NORTH CAROLINA
Duke University
932 Morreene Rd.
Durham, North Carolina 27705
HSG Investigators
Burton Scott MD PhD, phone: 919-668-2493, burton.scott@duke.edu
Mark Stacy MD, phone: 919-668-3597, mark.stacy@duke.edu
HSG Coordinators
Sarah Wyne, MDIV, phone: 919-668-2837, wyne1991@duke.edu
Lisa Gauger BA, phone: 919-668-1538, lisa.gauger@duke.edu
Wake Forest University Health Sciences
Medical Center Blvd.
Winston-Salem, North Carolina 27157
HSG Investigator
Francis Walker MD, phone: 336-716-8611
HSG Coordinator
Christine O'Neill, phone: 336-716-8611, coneill@wfubmc.edu
Victoria Hunt RN, phone: 336-716-2131, vhunt@wfubmc.edu
OHIO
The Ohio State University
371 McCampbell Hall, 1581 Dodd Dr
Columbus, Ohio 43210
HSG Investigators
Sandra Kostyk MD PhD, phone: 614-688-3675, sandra.kostyk@osumc.edu
Karen Thomas DO, phone: 614-688-4048, karen.thomas@osumc.edu
HSG Coordinator
Allison Seward MS, phone: 614-688-8672, allison.seward@osumc.edu
University of Cincinnati/Cincinnati Children's Hospital
222 Piedmont Avenue, Suite 3200
Cincinnati, Ohio 45219
HSG Investigator
Fredy Revilla MD, phone: 513-558-0018, fredy.revilla@uc.edu
HSG Coordinators
Mary Beth Bialick MSW, phone: 513-558-0018, howardb33@aol.com
Maureen Gartner RN, phone: 513-558-0018, maureen.gartner@uc.edu
OREGON
Oregon Health & Science University
3181 SW Sam Jackson Pk. Rd, OP-32
Portland, Oregan 97239
HSG Investigator
Penny Hogarth MD, phone: 503-494-7352, hogarthp@ohsu.edu
HSG Coordinators
Pamela Andrews, phone: 503-494-0965, andrewsp@ohsu.edu
April Wilson, phone: 503-418-1769, wilsonap@ohsu.edu
PENNSYLVANIA
University of Pennsylvania
330 S. 9th Street
Philadelphia, Pennsylvania 19107
HSG Investigator
Amy Colcher MD, phone: 215-829-7915, colchera@pahosp.com
HSG Coordinator
Lisa Altin BS, phone: 215-829-6500, laltin@pahosp.com
Other Site Contacts
Barbara Pyne, Contracts, phone: 215-829-3709, bapyne@pahosp.com
University of Pittsburgh
3471 Fifth Avenue, Suite 811
Pittsburgh, Pennsylvania 15213
HSG Investigators
Robert Y. Moore MD PhD, phone: 412-692-4659, rym@pitt.edu
J. T. Greenamyre MD PhD, phone: 412-648-9793, greenamyrejt@upmc.edu
HSG Coordinators
Nancy Lucarelli MA, phone: 412-692-4659, lucarellina2@upmc.edu
Larry Ivanco, phone: 412-692-2394, lsi1@pitt.edu
RHODE ISLAND
NeuroHealth
227 Centerville Rd
Warwick, Rhode Island 02886
HSG Investigator
Joseph H. Friedman MD, phone: 401-732-3332, jfriedman@neurohealth.info
HSG Coordinators
Margaret C. Lannon RN MS, phone: 401-921-4245, mclannon@neurohealth.info
Lisa Sardinha BS, phone: 401-921-4246, lsardinha@neurohealth.info
Lisa Laferriere, phone: 401-921-4208, llaferriere@neurohealth.info
TENNESSEE
University of Tennessee Health Science Center
855 Monroe Ave., Suite 415
Memphis, Tennessee 38163
HSG Investigators
Mark LeDoux MD PhD, mledoux@utmem.edu
HSG Coordinators
Corey Lohnes MS, phone: 901-448-3380, clohnes@utmem.edu
TEXAS
Baylor College of Medicine
6550 Fannin St. #1801
Houston, Texas 77030
HSG Investigators
Joseph Jankovic, phone: 713-798-7438
Joohi Jimenez-Shahed MD, phone: 713-798-7438
William Ondo MD, phone: 713-798-7438
HSG Coordinators
Christine Hunter, RN, phone: 713-798-3951, chunter@bcm.edu
Sharon L. Halton LCSW, phone: 713-798-3974, slhalton@bcm.edu
University of Texas Medical Branch At Galveston
301 University of Boulevard
Galveston, Texas 77555-0539
HSG Investigator
Tetsuo Ashizawa MD, phone: 409-772-2466, teashiza@utmb.edu
HSG Coordinator
Penny Stanton CCRP, phone: 409-747-2111, pstanton@utmb.edu
UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd, H1.108
Dallas, Texas 75390
HSG Investigator
Padraig O'Suilleabhain MD, phone: 214-648-2943, padraig.osuilleabhain@utsouthwestern.edu
HSG Coordinator
Allison Johnson BS CCRC, phone: 214-648-3329, allison.johnson@utsouthwester.edu
VIRGINIA
University of Virginia Health Sciences Center
500 Ray C. Hunt Drive
Charlottesville, Virginia 22903
HSG Investigator
Madaline B. Harrison MD, phone: 434-924-5568, mbh3y@virginia.edu
HSG Coordinators
Robert B. Davis FNP, phone: 434-243-5611, rbd4n@virginia.edu
Susan Dietrich MD, phone: 434-243-5422, sjd3c@virginia.edu
Other Site Contacts
Emily Snelling, Data Entry, phone: 434-243-5422, ecs4n@hscmail.mcc.virginia.edu
WASHINGTON
University of Washington
1959 N.E. Pacific
Seattle, Washington 98195
HSG Investigators
Elizabeth Aylward, phone: 206-221-6610, eaylward@u.washington.edu
Ali Samii MD, phone: 206-764-2021, asamii@u.washington.edu
Thomas Bird MD, phone: 206-764-2308, tomnroz@u.washington.edu
Albert La Spada MD, phone: 206-598-2138, aspada@u.washington.edu
HSG Coordinator
Hillary Lipe ARNP, phone: 206-277-1825, hlip@u.washington.edu
Other Site Contacts
James Olson, Basic Sciences Researcher, phone: 206-667-7955, jimmyo@u.washington.edu
WISCONSIN
Medical College of Wisconsin Department of Neurology
9200 W Wisconsin Ave
Milwaukee, Wisconsin 53226
HSG Investigators
Serena Hung MD, phone: 414-805-9719,
Karen Blindauer MD, phone: 414-805-5266
HSG Coordinator
Karen Abou-Samra, phone: 414-805-8359, kabousar@mcw.edu
UNITED KINGDOM AND EUROPE
ENGLAND
Cambridge Centre for Brain Repair
Forvie Site, Robinson Way
Cambridge, Cambridgeshire, England CB2 0PY
HSG Investigators
Roger Barker BA MBBS MRCP, phone: 01223 331160, rab46@cam.ac.uk
Ben Wright, phone: 01223 331160, blcw2@cam.ac.uk
HSG Coordinator
Sarah Mason BSC, phone: 01223 331160, slm64@cam.ac.uk
Other Site Contacts
Kate Fisher, Administrator, phone: 01223-331160, kmf29@cam.ac.uk
Dept of Clinical Neurosciences, Institute of Neurology
Rowland Hill Street
London, England NW3 2PF
HSG Investigator
Thomas Warner, phone: 44 207 8302951, t.warner@medsch.ucl.ac.uk
HSG Coordinator
Maggie Burrows RN BA, phone: 207- 794-0500 ext 36834, m.burrows@medsch.ucl.ac.uk
Other Site Contacts
Thomasin Andrews MD BSC MRCP, Motor rater, , thomasin.andrews@gstt.nhs.uk
Elizabeth Rosser MBBS, Motor Rater, rossee@gosh.nhs.uk
The National Hospital for Neurology and Neurosurgery/The Institue of Neurology, University College London
Box 104, Queen Square
London, England WC1N 3BG
HSG Investigators
Thomas Warner MD PhD, phone: 0207 837 0299, twarner@medsch.ucl.ac.uk
Thomasin Andrews MD BSC MRCP, phone: 0207 837 0299, thomasin.andrews@gstt.nhs.uk
Elizabeth Rosser MBBS, phone: 0207 837 0299, rossee@gosh.nhs.uk
HSG Coordinator
Sarah Tabrizi BSc PhD, phone: 0207 837 0299, sarah.tabrizi@prion.ucl.ac.uk
The University of Manchester
Medical Genetics Research Group and Regional Genetic Service St. Mary's Hospital
Hathersage Road
Manchester M13 0JH, United Kingdom
HSG Investigator
David Craufurd MBBS MSc FRCPsych, phone: 44-1612766510, david.craufurd@manchester.ac.uk
HSG Coordinator
Ruth Fullam BSc, phone: 44 1612765956, ruth.fullam@manchester.ac.uk
Other Site Contacts
Elizabeth Howard BSc MBChB MRCGP, Motor Assessor, phone: 44 1612766510, elizabeth.howard@cmmc.nhs.uk
GERMANY
University of Ulm- Department of Neurology
Oberer Eseisberg 45/1
Ulm, Germany D-089081
HSG Investigator
Bernhard G Landwehrmeyer MD, phone: 49-731-500-50950, bernhard.landwehrmeyer@uni-ulm.de
HSG Coordinator
Katrin Barth, phone: 49-731-500-50967, katrin.barth@uni-ulm.de
Sonja Trautmann, phone: 49-731-500-50967, sonja.trautmann@uni.ulm.de
SCOTLAND
North of Scotland Clinical Genetics Service
Clinical Genetics Centre, 1st Floor Argyll House, Cornhill Road
Aberdeen, Scotland AB25 2ZR
HSG Coordinators
Shelia Simpson MD, phone: 44 1224 552120, s.a.simpson@abdn.ac.uk
Kirsty Matheson, phone: 44 1224 552120, kirsty.matheson@nhs.net
SPAIN
Hospital Ram'on y Cajal Sercicio De Neurologia
Planta-2 Centro
KM 9.100, Madrid , Spain 28034
HSG Investigator
Justo Garcia De Yebenes MD, phone: 31-91-336-8833, jgyebenes@yahoo.com
Other Site Contacts
Maria Angeles Robles, phone: 31-91-336-8821, neurol.hrc@salud.madrid.org
WALES
Brain Repair Group, Cardiff University
Museum Avenue
Cardiff, Wales CF19 3US
HSG Investigator
Anne Rosser MD PhD MRCP, phone: 44 0 2920875188, rosserae@cf.ac.uk
HSG Coordinator
Kathy Price RN, phone: 44(0)2920743454, priceka2@cf.ac.uk
Other Site Contacts
Jenny Naji PhD BSC, Psychologist, phone: 44-0-2920875197, najijj@Cardiff.ac.uk
CANADA
ALBERTA
University of Alberta Movement Disorders Program
10230 - 111 Avenue
Edmonton, Alberta T5G 0B7
HSG Investigators
Wayne Martin MD, phone: 780-735-8805, mdclinic@ualberta.ca
Ted Roberts MD, phone: 780-735-8805, mdclinic@ualberta.ca
HSG Coordinators
Pam King BScN RN, phone: 780-735-8805, mdclinic@ualberta.ca
Marguerite Wieler MSc, phone: 780-735-8805, mdclinic@ualberta.ca
University of Calgary Movement Disorders Clinic Area 3
3350 Hospital Drive NW
Calgary, Alberta T2N4NI
HSG Investigators
Sarah Furtado MD PhD FRCPC, phone: 403-944-4364, furtado@ucalgary.ca
Oksana Suchowersky MD, phone: 403-944-4364, osuchowe@ucalgary.ca
HSG Coordinators
Mary Lou Klimek RN BN MA, phone: 403-210-8548, klimek@ucalgary.ca
Carol Pantella RN, phone: 403-220-2276, pantella@ucalgary.ca
BRITISH COLUMBIA
The University of British Columbia
Dept of Medical Genetics - UBC Hospital, 2211 Wesbrook Mall, Room S179
Vancouver, British Cloumbia V6T 2B5
HSG Investigators
Lynn A. Raymon MD PhD FRCP(C), phone: 604-822-7738
Blair R. Leavitt MDCM FRCP(C), phone: 604-822-7738
Michael R. Hayden MB ChB PhD FRCP(C) FRSC, phone: 604-822-7738,
HSG Coordinator
Joji Decolongon, MSc, CCRP, phone: 604-822-7928, joji@cmmt.ubc.ca
Other Site Contacts
Allison Coleman BSC, Research Coordinator, phone: 604-822-7739, allison@cmmt.ubc.ca
Rachelle Dar Santos, Research Assistant, phone: 604-822-7738, rachelle@cmmt.ubc.ca
Aaron Sturrock MB BS, Research Fellow, phone: 604-822-7738, asturrock@cmmt.ubc.ca
Susan Creighton, Genetic Counselor, phone: 604-822-7738
ONTARIO
London Health Science Centre
339 Windermere Road
London, Ontario N6A 5A5
HSG Investigator
Christopher Hyson MD, phone: 519-663-3404, chyson@uwo.ca
HSG Coordinator
Kori LaDonna BA, phone: 519-685-8500 EXT 34858, kladonna2@uwo.ca
Ottawa Hospital Civic Site
737 Parkdale Avenue
Ottawa, Ontario K1Y 1J8
HSG Investigator
Tilak Mendis MD, phone: 613-562-4253, tmendis@scohs.on.ca
The Centre for Movement Disorders
2780 Bur Oak Avenue
Markham, Ontario L6B 1C9
HSG Investigators
Mark Guttman PhD, phone: 905-472-7082
John Adams PhD
HSG Coordinators
Adam Singer BA, phoen: 905-472-7082 x229, asinger@movementdisorders.ca
Jane Forsyth RN, phone: 905-472-7082 x 235, jforsyth@movementdisorders.ca
Other Site Contacts
Alanna Sheinberg, Cognitive Rater, phone: 905-472-7082 x230, asheinberg@movementdisorders.ca
QUÉBEC
CHUM-Notre-Dame Hospital
1560 Sherbrooke east
Montréa, Québec H2L 4M1
HSG Investigators
Sylvain Chouinard PhD, phone: 514-890-8000 ext. 26470, lyne.jean.chum@ssss.gouv.qc.ca
Michel Panisset MD, phone: 514-890-8000 ext. 26470, lyne.jean.chum@ssss.gouv.qc.ca
HSG Coordinator
Hubert Poiffaut RN, phone: 514-890-8000 ext. 26470, lyne.jean.chum@ssss.gouv.qc.ca
Daniel Lamourex PhD, phone: 514-412-8000 ext. 26394, daniel.lamourex.chum@ssss.gouv.qc.ca
Other Site Contacts
Lyne Jean, Administrator, phone: 514-890-8000 ext. 26470, lyne.jean.chum@ssss.gouv.qc.ca
AUSTRALIA
NEW SOUTH WALES
Westmead Hospital, Department of Neurology Level 1A
Hawkesbury Road
Westmead, New South Wales2145
HSG Investigator
Elizabeth McCusker MD, phone: 61-2-98456793, elizabeth_mccusker@mail.wmi.usyd.edu.au
HSG Coordinators
Jane Griffith RN, phone:61-2-98459139, jane_grifith@wsahs.nsw.gov.au
Kylie Richardson BLS (Psych Hons I), phone: 61-2-98459139, kylie.richardson@swahs.health.nsw.gov.au
Shanthi Graham BS, phone: 61-2-98456793, shanthi_graham@wsahs.nsw.gov.au
VICTORIA
Academic Unit for Psychiatry of Old Age, Melbourne University
Normanby House, St George's Hospital, 283 Cotham Road
Kew, Melbourne, Victoria 03101
HSG Investigators
Edmond Chiu MD, phone: 613 9816 0508, e.chiu@unimelb.edu.au
David Ames MD, phone: 613 9816 0485, dames@unimelb.edu.au
Andrew Churchyard MD, phone: 613 9500 9899, andrewchurchyard@bigpond.com
Phyllis Chua MD, phone: 613 9594 1479, phyllis.chua@med.monash.edu.au
Olga Yastrubetskaya PhD, phone: 613 9816 0436, olgay@unimelb.edu.au
HSG Coordinators
Olga Yastrubetskaya PhD, phone: 613 9816 0436, olgay@unimelb.edu.au
Bernadette Mannaa RN, phone: 613 9816 0444, bmannaa@unimelb.edu.au
Anita Goh PhD, phone: 613 9816 0641, goha@unimelb.edu.au
Other Site Contacts
Joy Preston, Administrative Assistant, phone: 9816 0508, jpreston@unimelb.edu.au
Liz Ronsisvalle, Cognitive Assessor, phone: 9816 0482, emr@unimelb.edu.au
Phillip Dingjan BA, Cognitive Assessor, phone: 9816 0506, phillip.dingjan@svhm.org.au
Royal Melbourne Hospital Melbourne Neuropsychiatry Centre
Depatment of Psychiatry 1 North, Main Block
Parkville, Victoria 3050
HSG Investigators
Phyllis Chua MD, phone: 61-3-9342-8750, phyllis.chua@med.monash.edu.au
HSG Coordinator
Angela Komiti BBSc, M, phone: 61-3-9342-7705, angelaak@unimelb.edu.au
WESTERN AUSTRALIA
Neurosciences Unit, Perth Australia
Cnr Mooro Drive & John XXIII Avenue
Mount Claremont, Western Australia 06010
HSG Investigator
Peter Panegyres MB PhD, phone: 61-08-9347 6464, neurossciences@health.wa.gov.au
HSG Coordinator
Mark Woodman B SC, phone: 61-08-9347 6464, mark.woodman@health.wa.gov.au
Other Site Contacts
Carmela Connor MP, Co-Investigator, phone: 61-08-9347 6464, carmela.connor@health.wa.gov.au