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The health professionals who participate in the Huntington Study Group (HSG) each have a major commitment to care for people with HD and their families, and an equally compelling commitment to find better ways to treat symptoms while working toward finding a cure for HD.

Are you interested in becoming a HSG Research Site? New sites are being credentialed all the time. Please see Becoming an HSG Research Site for more information. A list of the newly-credentialed HSG Research Sites (as of August 2009) can be found on the News Page (at the August 18, 2009 entry).

Each HSG Research Site has a unique program designed to meet the needs of families in their community. Contact one of the sites on the list below to learn more.

HSG Members 
HSG 2009
Baltimore, Maryland

 

UNITED STATES OF AMERICA
(By state: A, B, C, D, E, F, G, H, I, J, K, L, M, N, O, P, Q, R, S, T, U, V, W, X, Y, Z)

UNITED KINGDOM and EUROPE

CANADA

AUSTRALIA

NEW ZEALAND


UNITED STATES OF AMERICA
(By state: A, B, C, D, E, F, G, H, I, J, K, L, M, N, O, P, Q, R, S, T, U, V, W, X, Y, Z)

ALABAMA

University of Alabama at Birmingham
CHB 314 1600 7th Avenue South
Birmingham, Alabama 35233
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-EPHAROS

ARIZONA

Mayo Clinic
13400 E Shea Blvd
Scottsdale, Arizona 85259
HSG Investigator
          John N. Caviness MD, phone: 480-301-8100
HSG Coordinators
          Heather Stein BA CCRP, phone: 480-301-4750
          Marie Malikowski RN, phone: 480-301-8280
Site is involved in the following HSG studies: 2CARE, COHORT, HORIZON, PHAROS 

CALIFORNIA

UCLA Medical Center
Reed Neurological Research Center, 710 Westwood Plaza, Suite 1167
Los Angeles, California 90095
HSG Investigators
          Susan Perlman, MD, phone: 310-794-1225,
          Yvette Bordelon MD PhD, phone: 310-794-1225,
          Nicholas Szumski MD,
HSG Coordinators
          Angelina Gratiano,
          Arik Johnson Psy D, phone: 310-206-8153,
Site is involved in the following HSG Studies: COHORTPHAROS, PREDICT-HD

University of California Davis Medical Center Department of Neurology
4860 Y Street, Suite 3700
Sacramento, California 95817
HSG Investigators
          Vicki L. Wheelock MD, phone: 916-734-6287,
HSG Coordinator
          Terry Tempkin RNC MSN ANP, phone: 916-734-6278,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HORIZON, PHAROS, PREDICT-HD

University of California, San Diego
8950 Villa La Jolla Drive, C129
La Jolla, California 92037
HSG Investigator
          Jody Corey-Bloom MD PhD, phone: 858-642-3470,
HSG Coordinator
          Jody Goldstein BS, phone: 858-622-5854,
Site is involved in the following HSG Studies: COHORT, HART, HORIZON, PHAROS

University of California, Irvine
101 The City Drive South
Orange, California 92868
Site is involved in the following HSG Studies: 2CARE, CREST-E, HORIZON

University of California, San Francisco (UCSF)
350 Parnassus Avenue, Suite 905
San Francisco, California 94117
HSG Investigators
          Michael D. Geschwind MD PhD, phone: 415-476-6880
          Adam Boxer MD PhD, phone: 415-476-6880
          Marc I. Diamond MD, phone: 415-514-4404
HSG Coordinator
          Jonathan Gooblar, phone: 415-476-1686,
Other Site Contacts
          Christina Wyss-Coray, Nurse, 415-476-6880
          Joanne Robinson-Teran, Social Worker, phone: 415-476-6880
          Andrea Zanko, Genetics Counselor, phone: 415-476-9320
Site is involved with the following HSG Studies: HORIZON, PREDICT-HD

COLORADO

Colorado Neurological Institute
701 East Hampden Avenue Suite 510
Englewood, Colorado 80113
HSG Investigators
          Rajeev Kumar MD, phone: 303-357-5455
          Vicki Segro MSN C-ANP, phone: 303-357-5455
HSG Coordinators
          Diane Erickson RN BSN CCRC, phone: 303-762-6674,
          Dawn Miracle MS, phone: 303-783-4974,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, PHAROS, PREDICT-HD

CONNECTICUT

Institute for Neurodegnerative Disorders
60 Temple Street, Suite 8b
New Haven, Connecticut 06510
HSG Investigators
          Danna Jennings MD, phone: 203-401-4300,
          Kenneth Marek MD, phone: 203-401-4300,
          David Russell MD PhD, phone: 203-401-4346
HSG Coordinators
          Wilma Uy MD, phone: 203-401-4339,
          Karen Caplan MSW, phone: 203-401-4347,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, PHAROS

University of Connecticut Health Center
263 Farmington Ave
Farmington, Connecticut 06030
HSG Investigator
          Kaloyan Tanev MD, phone: 860-679-4441,
HSG Coordinator
          Mary Jane Fitzpatrick, APRN, phone: 860-679-4441,
Other Site Contacts
          Bonnie Hennig LCSW, Cognitive Rater, phone: 860 679-4441,
          Andrea Gainey, Cognitive Rater, phone: 860-679-4441,
Site is involved in the following HSG Studies: COHORT, CREST-E

FLORIDA

University of Florida Movement Disorders Center
100 S. Newell Drive, Rm. L3-100, PO Box 100236
Gainesville, Florida 32610
HSG Investigator
          Hubert H. Fernandez MD, phone: 352-273-5550,
HSG Coordinators          
          Annie Smith-Bova, phone: 352-273-5611,
Other Site Contacts
          Cami Swartz, Administrative Coordinator for Clinical Research, phone: 352-273-5612,
Site is involved in the following HSG Studies: 2CARE, HORIZON

University of Miami Miller School of Medicine
1501 NW 9th Avenue, 2nd Floor
Miami, Florida 33136
HSG Investigator
          Carlos Singer MD, phone: 305-243-6732
HSG Coordinator
          Monica Quesada, phone: 305-243-3647,
          Anita Blenke PA-C MS, phone: 305-243-2235,
Other Site Contacts
          Marian A. Perez, Regulatory Administrator, phone: 305-243-6200,
Site is involved in the following HSG Studies: 2CARE, COHORT, HORIZON, PHAROS

University of South Flordia - Movement Disorders Center
4 Columbia Drive Suite 410
Tampa, Florida 33606
HSG Investigator
          Robert Hauser MD, phone: 813-844-4455,
HSG Coordinator
          Holly Delgado RN, phone: 813-844-4453,

University of South Florida - HDSA Center of Excellence -Department of Neurology
12901 Bruce B. Downs Blvd., MDC-55
Tampa, Florida 33612
HSG Investigator
          Juana Sanchez-Ramos PhD MD, phone: 813-974-6022,
HSG Coordinator
          Marcia McCall MTS, phone: 813-974-6022,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, PHAROS

GEORGIA

Emory University
Wesley Woods Health Center, 1841 Clifton RD
Atlanta, Georgia 30329
HSG Investigators
          Randi Jones PhD, phone: 404-728-6849,
          Stewart Factor DO, phone: 404-728-4895,
          Claudia Testa MD PhD, phone: 404-727-4174,
HSG Coordinators
          Carol Ingram RN, phone: 404-728-6859,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HORIZON, PHAROS, PREDICT-HD

Medical College of Georgia
1429 Harper Street, HF1121
Augusta, Georgia 30912
HSG Investigator
          John C. Morgan MD PhD, phone: 706-721-2798,
HSG Coordinator
          Buff Allison Dill BSEd, phone: 706-721-0619,
Site is involved in the following HSG Studies: COHORTCREST-E, HART
          

IDAHO

Movement Disorders Center
Idaho Elks Rehabilitaion Hospital
600 North Robbins Road
Boise, Idaho 83702
HSG Investigators
         Lauren Seeberger MD, phone: 208-489-4599,
HSG Coordinators
          Jane Harris RN MS, phone: 208-493-0324,
          Peggy Vieira BS, phone: 208-493-0321,
Site is involved in the following HSG Studies: CREST-E,HORIZON

ILLINOIS

Rush University Medical Center
1725 W. Harrison Street; Suite 755
Chicago, Illinois 60612
HSG Investigator
          Kathleen M. Shannon MD, phone: 312-563-2900,
HSG Coordinator
          Jean A. Jaglin RN CCRC, phone: 312-563-2900,
Related Link: February 2009 Tetrabenazine Article
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, PHAROS

Universtiy of Chicago
5841 S. Maryland Avenue, MC2030
Chicago, Illinois 60637
HSG Investigator
          Un Jung Kang MD, phone: 773-702-6389,
HSG Coordinator
          Joan E. Young CCRC, phone: 773-834-1688,
Site is involved in the following HSG Studies: COHORT
 

INDIANA

Indiana University School of Medicine
975 W, Walnut
Indianapolis, Indiana 46202
HSG Investigator
          Kimberly Quaid PhD, phone: 317-274-2390,
HSG Coordinator
          Melissa Wesson MS, phone: 317-278-9545,
Other Site Contacts
          Joanne Wojcieszek MD, Motor Rater, phone: 317-278-2340,
Site is involved in the following HSG Studies: 2CARE, COHORT, HART, HORIZON, PHAROS, PREDICT-HD

IOWA

University of Iowa
1-305 Medical Education Building
Iowa City, Iowa 52242
HSG Investigators
          Jane Paulsen PhD, phone: 319-353-4551,
          Kevin Duff PhD, phone: 319-335-6640,
          Leigh Beglinger PhD, phone: 319-335-8765,
HSG Coordinator
          Anne Leserman MSW LISW, phone: 319-353-4307,
          Nancy Hale, BS,RN, phone: 319-353-4537,
Other Site Contacts
          Christine Werling-Wikoske, Program Assistant, phone: 319-353-3007,
          Ann Dudler, Project Assistant, phone: 319-353-4542,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, HORIZON, PHAROS, PREDICT-HD

KANSAS

Hereditary Neurological Disease Centre (HNDC)
654 North Woodchuck
Wichita, Kansas 67212
HSG Investigator
          William M Mallonee MD, phone: 316-721-9250,
HSG Coordinator
          Gregory Suter BA, phone: 316-721-9250 or toll free 888-232-4632,
Site is involved in the following HSG Studies: 2CARE, COHORT, HORIZON, PHAROS,     PREDICT-HD

University of Kansas Medical Center
3599 Rainbow Boulevard
Kansas City, Kansas 66160
HSG Investigator
          Richard Dubinsky MD, phone: 913-588-6970
HSG Coordinator
          Carolyn Gray RN CCRC, phone: 913-588-6983,
Other Site Contacts
          Janice Broyles RN, Clinical Research Nurse, phone: 913-588-0683,
          Hilary Dubinsky, Research Assistant, phone: 913-945-5019,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HORIZON, PHAROS, PREDICT-HD

MARYLAND

Johns Hopkins University
600 N Wolfe St, Meyer Bldg., Ste. 2-181
Baltimore, Maryland 21287
HSG Investigators
          Christopher Ross MD PhD, phone: 410-955-2398
          Adam Rosenblatt MD, phone: 410-955-2398
          Russell L. Margolis MD, phone: 410-955-2398
          Jason Brandt PhD ABPP(CN), phone: 410-955-2619
HSG Coordinators
          Claire Welsh, phone: 410-955-1349, 
          Nadine Yoritomo, phone: 410-614-9254,
          Barnett Shpritz, phone: 410-955-2619,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, HORIZON, PHAROS, PREDICT-HD

University of Maryland Parkinson's Disease and Movement Disorders Center
22 South Greene Street
Baltimore, Maryland 21201
HSG Investigators
          William Weiner MD, phone: 410-328-6483,
          Karen Anderson MD, phone: 410-328-2212,
HSG Coordinators
          Michelle Cines RN CCRC, phone: 410-328-7817,
          Nancy Zappala RN CDE, phone: 410-328-7817,
          Connie Nickerson LPN, phone: 410-328-0157,
Other Site Contacts
          Ine Saka BS, IRB and Regulatory Document Submission, phone: 410-328-3333,
          Kathleen Pear LGSW, Licensed Social Worker, phone: 410-328-2108,
          Maura Deeley, Research Coordinator, phone: 410-328-7816,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, HORIZON, PHAROS

MASSACHUSETTS

Boston University
715 Albany Street, C329
Boston, Massachusetts 02118
HSG Investigators
          Samuel Frank, MD, phone: 617-638-8647,
          Marie Saint-Hilaire MD,
          Anna Depold Hohler MD,
HSG Coordinator
          Melissa Diggin NP, phone: 617-638-7704,
Site is involved in the following HSG Studies: 2CARE, COHORT, PHAROS

Massachusetts General Hospital
149 13th Street
Charlestown, Massachusetts 02129
HSG Investigators
          H. Diana Rosas MD MS, phone: 617-726-9128
          Steven M. Hersch MD PhD, phone: 617-726-9128
          Anne B. Young MD, PhD
          Jang-Ho J. Cha MD PhD
HSG Coordinators
          Alex Bender BA, phone: 617-724-2227,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, HORIZON, PHAROS, PREDICT-HD

MICHIGAN

University of Michigan
1500 East Medical Center Dr., Taubman Ctr 1920
Ann Arbor, Michigan 48105-5316
HSG Investigators
          Kelvin Chou MD, phone: 734-615-4772,
          Roger Albin MD, phone: 734-764-1347,
HSG Coordinator
          Kris Wernette RN, MS, phone: 734-936-5894,
Sitr is involved in the following HSG Studies: 2CARE, CREST-E, PHAROS

MINNESOTA

Hennepin County Medical Center
Neuro P-5; 701 Park Avenue
Minneapolis, Minnesota 55415
HSG Coordinator
          Dawn Radtke RN
Site is involved in the following HSG Studies: COHORT, PHAROS

Struthers Parkinson's Center
6701 Country Club Drive
Golden Valley, Minnesota 55427
Site is involved in the following HSG Studies: 2CARE, CREST-E, HART, HORIZON

MISSOURI 

Washington University School of Medicine
660 South Euclid Avenue, Campus Box 8111
St. Louis, Missouri 63021
HSG Investigator
          Joel S. Perlmutter MD, phone: 314-362-6908
HSG Coordinator
          Stacey K. Barton MSW LCSW, phone: 314-362-3471,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, HORIZON, PHAROS, PREDICT-HD

NEW JERSEY

New Jersey Neuroscience Institute
JFK Medical Center, 65 James Street
Edison, New Jersey 08818
HSG Investigator
          Philip Hanna MD, phone: 732-321-7950,
HSG Coordinator
          Charles Porbeni MD, phone: 732-321-7000,           
Other Site Contacts
          Arthur Walters MD, Sub-Investigator, phone: 732-321-7950,
Site is involved in the following HSG Studies: 2CARE, CREST-E

The Center for Neuropsychiatry
11009 Lincoln Drive West
Marlton, New Jersey 08053
HSG Investigators
          Allen Rubin MD, phone: 856-985-9851
          Anna Alexander, phone: 856-985-9851

NEW YORK

Albany Medical College
47 New Scotland Avenue
Albany, New York 12208
HSG Investigators
          Eric S. Molho MD, phone: 518-262-6611,
          Donald S. Higgins Jr MD, phone: 518-262-6611,
HSG Coordinators
          Sharon Evans LPN, phone: 518-262-6611,
          Katy Regan, phone: 518-262-6611,
Other Site Contacts
          Heather Voorhees-Goosmann, Fiscal Coordinator, phone: 518-262-6611,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, PHAROS

Columbia University
630 West 168th Street P&S Box 16
New York, New York 10032
HSG Investigator
          Karen Marder MD, phone: 212-305-9194,
 HSG Coordinators
          Carol Moskowitz MS RNC, phone: 212-305-5779,
          Ronda Clouse RN, phone: 212-305-2387,
          Paula Wasserman MA, phone: 212-305-4597,
Other Site Contacts
          Pietro Mazzoni MD PhD, Investigator,
          Elan Louis MD, Investigator,
          Steven Frucht MD, Investigator,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HORIZON, PHAROS, PREDICT-HD

North Shore-LIJ Health System Feinstein Institute for Medical Research
350 Community Dr
Manhasset, New York 11030
HSG Investigators
          Andrew Feigin MD, phone: 516-562-2905,
          Michael Pourfar MD, phone: 516-562-2426,
HSG Coordinators
          Barbara Shannon RN, phone: 516-562-2905,
          Jean Ayan RN, phone: 516-562-2426,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, PHAROS

Terence Cardinal Health Care Center
1249 Fifth Avenue
New York, New York 10029
HSG Investigator
          Anthony J. Lechich MD, phone: 212-360-3907,
HSG Coordinator
          Ayana Duckett BA, phone: 212-360-3978, Other Site Contacts
          Joseph Klager MD, Primary Care Physician, phone: 212-360-3610/3613

University of Rochester Medical Center/Movement and Inherited Disorders Unit
919 Westfall Road, Bldg. C, Ste. 220
Rochester, New York 14618
HSG Investigators
          Kevin Biglan MD, phone: 585-341-7500,
          Ray Dorsey MD, phone: 585-341-7500,
          Fred Marshall MD, phone: 585-341-7500,
          Bernard Ravina MD, phone: 585-341-7500,
HSG Coordinators
          Carol Zimmerman RN, phone: 585-341-7500,
          Charlyne Hickey MS RNC, phone: 585-341-7519,
          Amy Chesire LCSW-R MSG, phone: 585-341-7500,
Other Site Contacts
          Mary Wodarski, cognitve rater, phone: 585-341-7500,
          Sheelah Eason, Research Support, phone: 585-341-7500,
          Lisa Deuel, Research Assistant, phone: 585-341-7500,
Site is involved in the folllowing HSG Studies: 2CARE, COHORT, CREST-E, HART, HORIZON, PHAROS, PREDICT-HD

NORTH CAROLINA

Duke University
932 Morreene Rd.
Durham, North Carolina 27705
HSG Investigators
          Burton Scott MD PhD, phone: 919-668-2493,
          Mark Stacy MD, phone: 919-668-3597,
HSG Coordinators
          Sarah Wyne, MDIV, phone: 919-668-2837,  
          Lisa Gauger BA, phone: 919-668-1538,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HORIZON

Wake Forest University Health Sciences
Medical Center Blvd.
Winston-Salem, North Carolina 27157
HSG Investigator
          Francis Walker MD, phone: 336-716-8611
HSG Coordinator
          Christine O'Neill, phone: 336-716-8611,
          Victoria Hunt RN, phone: 336-716-2131,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HORIZON, PHAROS

OHIO

The Ohio State University
371 McCampbell Hall, 1581 Dodd Dr
Columbus, Ohio 43210
HSG Investigators
          Sandra Kostyk MD PhD, phone: 614-688-3675,
          Karen Thomas DO, phone: 614-688-4048,
  HSG Coordinator
          Allison Seward MS, phone: 614-688-8672,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, HORIZON, PHAROS

University of Cincinnati/Cincinnati Children's Hospital
222 Piedmont Avenue, Suite 3200
Cincinnati, Ohio 45219
HSG Investigator
          Fredy Revilla MD, phone: 513-558-0018,
HSG Coordinators
          Mary Beth Bialick MSW, phone: 513-558-0018,
          Maureen Gartner RN, phone: 513-558-0018,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART

University Hospitals Case Medical Center 
11100 Euclid Avenue
Cleveland, Ohio 44106
 

OREGON

Oregon Health & Science University
3181 SW Sam Jackson Pk. Rd, OP-32
Portland, Oregan 97239
HSG Investigator
          Penny Hogarth MD, phone: 503-494-7352,
HSG Coordinators
          April Wilson, phone: 503-418-1769,
Site is involved in the following HSG Studies: HORIZON, PHAROS

PENNSYLVANIA

University of Pennsylvania
330 S. 9th Street
Philadelphia, Pennsylvania 19107
HSG Investigator
          Amy Colcher MD, phone: 215-829-7915,
HSG Coordinator
          Lisa Altin BS, phone: 215-829-3582,
Other Site Contacts
          Barbara Pyne, Contracts, phone: 215-829-3709,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, HORIZON, PHAROS

University of Pittsburgh
3471 Fifth Avenue, Suite 811
Pittsburgh, Pennsylvania 15213
HSG Investigators
          J. T. Greenamyre MD PhD, phone: 412-648-9793,
HSG Coordinators
          Nancy Lucarelli MA, phone: 412-692-4659,
          Larry Ivanco, phone: 412-692-2394,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-EHORIZON

RHODE ISLAND

NeuroHealth
227 Centerville Rd
Warwick, Rhode Island 02886
HSG Investigator
          Joseph H. Friedman MD, phone: 401-732-3332,
HSG Coordinators
          Margaret C. Lannon RN MS, phone: 401-921-4245,
          Lisa Sardinha BS, phone: 401-921-4246,
          Lisa Laferriere, phone: 401-921-4208,
Site is involved in the following HSG Studies: 2CARE, HORIZON, PHAROS

TENNESSEE

University of Tennessee Health Science Center
855 Monroe Ave., Suite 415
Memphis, Tennessee 38163
HSG Investigators
          Mark LeDoux MD PhD,
HSG Coordinators
          Nathan Jones, phone: 901-448-6180,       
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART

TEXAS

Baylor College of Medicine
6550 Fannin St. #1801
Houston, Texas 77030
HSG Investigators
          Joseph Jankovic, phone: 713-798-7438
          William Ondo MD, phone: 713-798-7438
HSG Coordinators
          Christine Hunter RN, phone: 713-798-3951,
          Alicia Palao, MA, phone, 713-798-3974,
 Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, PHAROS, PREDICT-HD

University of Texas Medical Branch At Galveston
301 University of Boulevard
Galveston, Texas 77555-0539
HSG Investigator
       George Jackson MD, PhD
HSG Coordinator
        Jeanene Delarosa, phone, 409-772-8031,  
        Ruthie Kolb, phone, 409-772-8068,           
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E 

UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd, H1.108
Dallas, Texas 75390
HSG Investigator
          Padraig O'Suilleabhain MD, phone: 214-648-2943,
HSG Coordinator
          Allison Johnson BS CCRC, phone: 214-648-3329,
Site is involved in the following HSG Studies: 2CARE, CREST-E, HART

VIRGINIA

University of Virginia Health Sciences Center
500 Ray C. Hunt Drive
Charlottesville, Virginia 22903
HSG Investigator
          Madaline B. Harrison MD, phone: 434-924-5568,
HSG Coordinators
          Robert B. Davis FNP, phone: 434-243-5611,
          Susan Dietrich MD, phone: 434-243-5422,
Other Site Contacts
          Emily Snelling, Data Entry, phone: 434-243-5422,
Site is involved in the following HSG Studies: COHORT, PHAROS

WASHINGTON

University of Washington
1959 N.E. Pacific
Seattle, Washington 98195
HSG Investigators
          Elizabeth Aylward, phone: 206-221-6610,
          Ali Samii MD, phone: 206-764-2021,
          Thomas Bird MD, phone: 206-764-2308,
          Albert La Spada MD, phone: 206-598-2138,
HSG Coordinator
          Hillary Lipe ARNP, phone: 206-277-1825,
Other Site Contacts
          James Olson, Basic Sciences Researcher, phone: 206-667-7955,
Site is involved in the following HSG Studies: PHAROS

Booth Garden Parkinson's Care Center
12039 NE 128th Street, Third Floor
Kirkland, Washington 98034
Site is involved in the following HSG Studies: CREST-E, HART

WISCONSIN

Medical College of Wisconsin Department of Neurology
9200 W Wisconsin Ave
Milwaukee, Wisconsin 53226
HSG Investigators
          Serena Hung MD, phone: 414-805-9719,
          Karen Blindauer MD, phone: 414-805-5266 
HSG Coordinator
          Stephanie Rozman,phone: 414-805-9226,
          Karen Abou-Samra, phone: 414-805-8359,
          Clara Schindler, phone: 414-259-0469,
Site is involved in the following HSG Studies: HORIZON, PHAROS
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UNITED KINGDOM AND EUROPE

ENGLAND

Cambridge Centre for Brain Repair
Forvie Site, Robinson Way
Cambridge, Cambridgeshire, England CB2 0PY
HSG Investigators
          Roger Barker BA MBBS MRCP, phone: 01223 331160,
          Ben Wright, phone: 01223 331160,
HSG Coordinator
          Sarah Mason BSC, phone: 01223 331160,
Other Site Contacts
          Kate Fisher, Administrator, phone: 01223-331160,
Site is involved in the following HSG Studies: CREST-E, HORIZON, PREDICT-HD

Dept of Clinical Neurosciences, Institute of Neurology
Rowland Hill Street
London, England NW3 2PF
HSG Investigator
          Thomas Warner, phone: 44 207 8302951,
HSG Coordinator
          Maggie Burrows RN BA, phone: 207- 794-0500 ext 36834,
Other Site Contacts
          Thomasin Andrews MD BSC MRCP, Motor rater, ,
          Elizabeth Rosser MBBS, Motor Rater,
Site is invovled in the following HSG Studies: PREDICT-HD

The National Hospital for Neurology and Neurosurgery/The Institue of Neurology, University College London
Box 104, Queen Square
London, England WC1N 3BG 
HSG Investigators
          Thomas Warner MD PhD, phone: 0207 837 0299,   
          Thomasin Andrews MD BSC MRCP, phone: 0207 837 0299,   
          Elizabeth Rosser MBBS, phone: 0207 837 0299,
HSG Coordinator
          Sarah Tabrizi BSc PhD, phone: 0207 837 0299,
Site is involved in the following HSG Studies: HORIZON, PREDICT-HD

The University of Manchester
Medical Genetics Research Group and Regional Genetic Service St. Mary's Hospital
Hathersage Road
Manchester M13 0JH, United Kingdom
HSG Investigator
          David Craufurd MBBS MSc FRCPsych, phone: 44-1612766510,
HSG Coordinator
          Jenny Callaghan, phone: 44 1612765956,
Other Site Contacts
          Elizabeth Howard BSc MBChB MRCGP, Motor Assessor, phone: 44 1612766510,
Site is involved in the following HSG Studies: CREST-E, PREDICT-HD

GERMANY

University of Ulm- Department of Neurology
Oberer Eselsberg 45/1
Ulm, Germany D-089081
HSG Investigator
          Bernhard G Landwehrmeyer MD, phone: 49-731-500-63101,
HSG Coordinator
          Katrin Barth, phone: 49-731-500-63108,
          Sonja Trautmann, phone: 49-731-500-63081,
Site is involved in the following HSG Studies: HORIZON, PREDICT-HD

ITALY

Istituto di Ricovero e Cura a Carattere Scientifico (IRCCS)
IRCCS NEUROMED
Via Atinense 18
Pozzilli 86077
Site is involved in the following HSG Studies: HORIZON

SCOTLAND

North of Scotland Clinical Genetics Service
Clinical Genetics Centre, 1st Floor Argyll House, Cornhill Road
Aberdeen, Scotland AB25 2ZR
HSG Coordinators
          Shelia Simpson MD, phone: 44 1224 552120,
          Kirsty Matheson, phone: 44 1224 552120,
Site is involved in the following HSG Studies: PREDICT-HD

SPAIN

Hospital Ram'on y Cajal Sercicio De Neurologia
Planta-2 Centro
KM 9.100, Madrid , Spain 28034
HSG Investigator
          Justo Garcia De Yebenes MD, phone: 31-91-336-8833,
Other Site Contacts
          Maria Angeles Robles, phone: 31-91-336-8821,  
Site is involved in the following HSG Studies:

WALES

Brain Repair Group, Cardiff University
Museum Avenue
Cardiff, Wales CF19 3US
HSG Investigator
          Anne Rosser MD PhD MRCP, phone: 44 0 2920875188,
HSG Coordinator
          Kathy Price RN, phone: 44(0)2920743454,
Other Site Contacts
          Jenny Naji PhD BSC, Psychologist, phone: 44-0-2920875197,
Site is involved in the following HSG Studie: PREDICT-HD

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CANADA

ALBERTA

University of Alberta Movement Disorders Program
10230 - 111 Avenue
Edmonton, Alberta T5G 0B7
HSG Investigators
          Wayne Martin MD, phone: 780-735-8805,
          Ted Roberts MD, phone: 780-735-8805,
HSG Coordinators
          Pam King BScN RN, phone: 780-735-8805,
          Marguerite Wieler MSc, phone: 780-735-8805,
Site is involved in the following HSG Studies: 2CARE, HART, PHAROS, PREDICT-HD

University of Calgary Movement Disorders Clinic Area 3
3350 Hospital Drive NW
Calgary, Alberta T2N4NI
HSG Investigators
          Sarah Furtado MD PhD FRCPC, phone: 403-944-4364,
          Oksana Suchowersky MD, phone: 403-944-4364,
HSG Coordinators
          Mary Lou Klimek RN BN MA, phone: 403-210-8548,
          Carol Pantella RN, phone: 403-220-2276,
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, PHAROS, PREDICT-HD

BRITISH COLUMBIA

The University of British Columbia
Dept of Medical Genetics - UBC Hospital, 2211 Wesbrook Mall, Room S179
Vancouver, British Cloumbia V6T 2B5
HSG Investigators
          Lynn A. Raymon MD PhD FRCP(C), phone: 604-822-7738
          Blair R. Leavitt MDCM FRCP(C), phone: 604-822-7738
          Michael R. Hayden MB ChB PhD FRCP(C) FRSC, phone: 604-822-7738, 
HSG Coordinator
          Joji Decolongon, MSc, CCRP, phone: 604-822-7928,
Other Site Contacts
          Allison Coleman BSC, Research Coordinator, phone: 604-822-7739,
          Rachelle Dar Santos, Research Assistant, phone: 604-822-7738,
          Aaron Sturrock MB BS, Research Fellow, phone: 604-822-7738,
          Susan Creighton, Genetic Counselor, phone: 604-822-7738
Site is involved in the following HSG Studies: 2CARE, COHORT, CREST-E, HART, HORIZON, PHAROS, PREDICT-HD

MANITOBA

Movement Disorder Clinic, Deer Lodge Centre
200 Woodlawn Street
Winnipeg, Manitoba R3J 2H7
Phone: 204-940-8400
Site is involved in the following HSG Studies: COHORT, CREST-E

ONTARIO

London Health Science Centre
339 Windermere Road
London, Ontario N6A 5A5
HSG Investigator
          Christopher Hyson MD, phone: 519-663-3404,
HSG Coordinator
          Kori LaDonna BA, phone: 519-685-8500 EXT 34858,
Site is involved in the following HSG Studies: 2CARE, CREST-E, HART, HORIZON

Ottawa Hospital Civic Site
737 Parkdale Avenue
Ottawa, Ontario K1Y 1J8
HSG Investigator
          Tilak Mendis MD, phone: 613-562-4253,
Site is involved in the following HSG Studies: CREST-E, HART

The Centre for Movement Disorders
2780 Bur Oak Avenue
Markham, Ontario L6B 1C9
HSG Investigators
          Mark Guttman PhD, phone: 905-472-7082
          John Adams PhD 
HSG Coordinators
          Adam Singer BA, phone: 905-472-7082 x229,
          Jane Forsyth RN, phone: 905-472-7082 x 235,
Other Site Contacts
          Alanna Sheinberg, Cognitive Rater, phone: 905-472-7082 x230,
Site is involved in the following HSG Studies: 2CARE, COHORT,HART, PHAROS, PREDICT-HD

Parkinson's and Neurodegenerative Disorders Clinic
1929 Russell Road
Ottawa, Ontario K1G 4G3
Phone: 613-737-4440
Site is involved in the following HSG Studies: HART

QUÉBEC

CHUM-Notre-Dame Hospital
1560 Sherbrooke east
Montréa, Québec H2L 4M1
HSG Investigators
          Sylvain Chouinard PhD, phone: 514-890-8000 ext. 26470,
          Michel Panisset MD, phone: 514-890-8000 ext. 26470,
HSG Coordinator
          Hubert Poiffaut RN, phone: 514-890-8000 ext. 26470,
          Daniel Lamourex PhD, phone: 514-412-8000 ext. 26394,
Other Site Contacts
          Lyne Jean, Administrator, phone: 514-890-8000 ext. 26470,
Site is involved in the following HSG Studies: COHORT, CREST-E, HART, HORIZON, PHAROS

 

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AUSTRALIA

NEW SOUTH WALES

Westmead Hospital, Department of Neurology Level 1A
Hawkesbury Road
Westmead, New South Wales 2145
HSG Investigator
          Clement Loy MD,
          Elizabeth McCusker MD, phone: 61-2-98456793,
HSG Coordinators
          Shanthi Graham BS, phone: 61-2-98456793,
          Jane Griffith RN, phone:61-2-98459139,
          Bernadette Bibb PhD,  
Site is involved in the following HSG Studies: 2CARE, COHORTCREST-E, HORIZON, PREDICT-HD
          

VICTORIA

Academic Unit for Psychiatry of Old Age, Melbourne University
Normanby House, St George's Hospital, 283 Cotham Road
Kew, Melbourne, Victoria 03101
HSG Investigators
          Edmond Chiu MD, phone: 613 9816 0508,
          David Ames MD, phone: 613 9816 0485,
          Andrew Churchyard MD, phone: 613 9500 9899,
          Phyllis Chua MD, phone: 613 9594 1479,
          Olga Yastrubetskaya PhD, phone: 613 9816 0436,
HSG Coordinators
          Olga Yastrubetskaya PhD, phone: 613 9816 0436,
          Bernadette Mannaa RN, phone: 613 9816 0444,
          Anita Goh PhD, phone: 613 9816 0641,
Other Site Contacts
          Joy Preston, Administrative Assistant, phone: 9816 0508,
          Liz Ronsisvalle, Cognitive Assessor, phone: 9816 0482,
          Phillip Dingjan BA, Cognitive Assessor, phone: 9816 0506,
Site is involved in the following HSG Studies: COHORT, CREST-E, HORIZON, PREDICT-HD
       

Royal Melbourne Hospital Melbourne Neuropsychiatry Centre
Depatment of Psychiatry 1 North, Main Block
Parkville, Victoria 3050
HSG Investigators
          Phyllis Chua MD, phone: 61-3-9342-8750, 
HSG Coordinator
          Angela Komiti BBSc, M, phone: 61-3-9342-7705,
Site is involved in the following HSG Studie: PREDICT-HD

WESTERN AUSTRALIA

Neurosciences Unit, Perth Australia
Cnr Mooro Drive & John XXIII Avenue
Mount Claremont, Western Australia 6010
HSG Investigator
          Peter Panegyres MB PhD, phone: 61-08-9347 6464,
HSG Coordinator
          Mark Woodman B SC, phone: 61-08-9347 6464,
Other Site Contacts
          Carmela Connor MP, Co-Investigator, phone: 61-08-9347 6464,
Site is involved in the following HSG Study: CREST-E, HORIZON


 

 NEW ZEALAND


Auckland City Hospital
Private Bag 92024
Auckland, New Zealand
HSG Investigator
       Richard Roxburgh MD, phone: 367-0000 EXT 35810
HSG Coordinator
       Virginia Hogg, phone: 367-0000 EXT 35810
Site is invovled in the following HSG Studies: CREST-E

 

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Last Updated: December 2009