What is the Huntington Study Group (HSG)?

The Huntington Study Group (HSG) is a non-profit group of physicians and other health care providers from medical centers in the United States, Canada, Europe, Australia, New Zealand and South America, experienced in the care of Huntington patients and dedicated to clinical research of Huntington disease. The HSG was formed in 1993, prompted by the recognition that clinical research in Huntington disease (HD) required the participation of large numbers of research patients (subjects) under the cooperative care of skilled and experienced research physicians.

The HSG aims to advance knowledge about the cause(s), disease progression and treatment of HD and related disorders. The HSG is committed to:

• open communication within the scientific community;
• full disclosure of research results in scientific journals after independent expert review;
• revealing all potential conflicts of interest of the group and each HSG member and;
• democratic governance of its organizations and activities.

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Meet the Huntington Study Group:

HSG Executive Committee

Newly-Appointed HSG Executive Committee Members

HSG Staff

HSG Research Sites

Welcome to the Huntington Study Group web site. The HSG is made up of clinical researchers in North America, Europe, Australia, New Zealand and South America, who care for HD patients and families and who are working diligently to combat this disease.  Several new research trials are underway or being launched in 2009. We  ask you to visit our website for monthly updates and greatly appreciate your time and effort in seeking treatments that make a difference for Huntington disease.

Sincerely yours,
Ira Shoulson, MD
Chair, HSG Executive Committee
and
Steve Hersch, MD, PhD
Co-chair, HSG Executive Committee