What is the Huntington Study Group (HSG)?

The Huntington Study Group (HSG) is a non-profit group of physicians and other health care providers from medical centers in the United States, Canada, Europe and Australia, experienced in the care of Huntington patients and dedicated to clinical research of Huntington disease. The HSG was formed in 1993, prompted by the recognition that clinical research in Huntington disease (HD) required the participation of large numbers of research patients (subjects) under the cooperative care of skilled and experienced research physicians.

The HSG aims to advance knowledge about the cause(s), disease progression and treatment of HD and related disorders. The HSG is committed to:

• open communication within the scientific community;
• full disclosure of research results in scientific journals after independent expert review;
• revealing all potential conflicts of interest of the group and each HSG member and;
• democratic governance of its organizations and activities.

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Welcome to the Huntington Study Group web site. The HSG is made up of researchers in North America, Europe and Australia who are working diligently to combat HD.  Several new research trials are being launched in 2008-2009. We greatly appreciate your time and effort in seeking treatments that make a difference for Huntington disease.

Sincerely yours,
Ira Shoulson, MD
Chair, HSG Executive Committee
and
Steve Hersch, MD, PhD
Co-chair, HSG Executive Committee