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Sunday, August 01, 2010

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Welcome!

Welcome to the new Huntington Study Group web site! The HSG is made up of clinical researchers in North America, Europe, Australia, New Zealand and South America, who care for HD patients and families and who are working diligently to combat this disease. Several new research trials are underway or being launched in 2010. We ask you to visit our website for monthly updates and greatly appreciate your time and effort in seeking treatments that make a difference for Huntington disease.

Study: Project AWARE to Improve Awareness, Willingness and Ability for Research and Enrollment in Clinical Research

You hold the answers to helping the HD Research Community find important information about designing drug trials and observational studies.

The entire HD community needs your help!

PLEASE COMPLETE OUR PROJECT AWARE SURVEY
DATA COLLECTED FROM THIS SURVEY WILL BE CONFIDENTIAL AND DEIDENTIFIED

Click here to complete the survey!
http://surveys.supersurvey.com/survey-bin/surveys/s33876.pl

THANK YOU!

"Project AWARE" is an initiative of HD researchers and community members working together to analyze ways to improve HD patients' and families' awareness, willingness and ability to participate in clinical research and to gain knowledge on the design of future clinical trials and observational studies.

(Principal Investigator: Elise Kayson, MS, RNC; Huntington Study Group; University of Rochester Clinical Trials Coordination Center)

NEWS & Events

July 2010:

Update on the 2CARE Study "COENZYME Q10" in Huntinton's disease...click here to read more

June 2010: REGISTRATION NOW OPEN for the Fourth Annual HD Clinical Research Symposium. Click here for more information. Additionally, registration is now open for "WorkingTogether for HD Treatments: A Clinical Research Workshop" which will follow the Symposium. Registration for this event is separate; please click here for more information.

April 2010: The Call for Abstracts for the Fourth Annual Huntington Disease Clinical Research Symposium is now available! More information to follow, registration will be opening in May!

In recognition of Huntington's Disease (HD) Awareness Month in May, Lunbeck Inc. launched the Build Hope for HD donation campaign, click here for more details.

ENROLLING Studies

2CARE: Effects of Coenzyme Q10 on the progression of functional decline in HD... Learn More

CREST-E: Effects of creatine monohydrate on the progression of HD... Learn More

HORIZON: Effects of Dimebon on thinking and overall functioning in HD... Learn More

PREQUEL: Effects of Coenzyme Q10 in pre-manifest HD... Learn More

COHORT: Observational research study for individuals with HD and their family members... Learn More

PREDICT-HD 2.0: Observational research study for at-risk gene positive, pre-symptomatic and gene negative tested individuals... Learn More

Becoming an HSG Site!

Are you interested in becoming an HSG research site? Click here for more information.

FIND A SITE NEAR YOU!

Are you interested in participating in a trial? Click here to find a site near you!

Giving

If you would like to contribute a gift to the Huntington Study Group click here for details.

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